Hi and welcome to the Chiari and syringomyelia forum.
I did reply to ur PM and wanted to publicly welcome u to the group here.It does sound like u will need to start searching for a true chiari dr....not knowing where u r from , I can not suggest certain drs to look at, but we do have a list u can use to begin ur search...do research all the drs, the list is not a referral list.-
http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1293483
Many of us have surgery to prevent the onset of a syrinx, which u already have...so u do need to get to a true chiari dr. A syrinx is a good indication that u have a CSF blockage.
Let us know what we can do to help, but start by finding good drs near home as well as u will need them too!!
"selma"