Hi and welcome to the Chiari forum.
Please send me a PM(private message) regarding ur choice of Dr....I read in ur profile that u have sleep apnea...and I feel u need to get to a sleep clinic and a C-PAP machine ASAP !! do this b4 u do nething else.
Since going to WI is not convenient, u may want to go to CO instead...it may be closer to u flight time wise...
U found the right place to come and talk...our parents may times can not talk about it as they feel guilt, unfounded, but guilt non the less....and until they understand they have nothing to be guilty of will they be able to talk about it with u....
Parents and spouses want to take care of us and fix the problem...make us better, that is what moms do and that is what a husband feels his job is, but this is something they can not fix...no one can....so it is difficult for them to deal with....it takes time...and we have to remember there r many Drs that do not understand how Chiari affects us, so to expect our family to is not realistic...but what we really want is them to just say I hear u, I understand how u feel and I wish I could help...and give us a hug....
so here are a few virtual ((hugs)) for u...just know u r not alone, and we r here to offer ne support we can <3
I can feel your pain and I'm sorry that you had to have Chairi. When I first heard the word I couldn't even pronouce it let a lone understand it. We have a hard time excepting it and as Selma said our families just want it to go away. I am dealing with this now after 2 yrs post op and still having some issue I think we just want them to disappear, but we can't. So give your family time and when you find a NS who can explain things and the sisuation maybe they can join you so they can understand also. I am blessed with a wonderful family who researched ,watched videos, participated in my healing and it helped them and me to understand this is a family sisuation because it affects us and the ones who love us. As Selma said we are here for you and we understand what your going through and how your feeling. I'm happy that you found this site because it helps so much. Sending you many blesing from my heart.
Linda :)
For some reason it won't allow me to send you a private message? I'm new to all of this support group. I've put off learning more about the computer because my brain is fried. I keep hoping this nightmare will end. I'm also on Facebook as well, if that is easier to reach me that way?
Sarah
There is a code u have to fill in scroll the page down and u will see it on the bottom left....or send a friend request first,,,,