Hip pain?

[soccero]

does anybody have bad hip pain? im a little worried cause for a few months now my right hip has been bothering me a lot and i have been loosing range of motion in it. my dad has had both of his hips replaced due to osteo arthritis and i know that this can be an issue with eds right? well yesterday in pt they tried to work on my hip and i had significantly lost the range of motion i had before and it was incredibly painful and this morning its been rough.so im a little nervous. an ideas??
molly

[soccero]

what did they say was wrong with ur hip? im glad its getting better!!
molly

[Ashley416]

I had serious problems with my right hip and even underwent surgery that did nothing to help and it has slowly gotten better since my chiari surgery... can't explain why just letting you know that it can happen...

[soccero]

:)

[selmaS]

  we'll call it wishful thinking...lol...

[soccero]

lol i could have made it up though lol!

[selmaS]

  From what I am reading we can have ne kind of arthritis since it is our joints that are affected.....

I doubt u made it up, I am sure someone said it and that is where it is from

[soccero]

i guess i made that up lol :) you can have osteo arthritis with eds as well right? i thought that was very common because of the way our joints move?

[soccero]

im glad uve found a dr u like! i hope they can help!

[selmaS]

  Well in searching out do EDSers get RA I am finding some that have both, so I guess that answers that part....not sure the science of it all....

[hevnw8s]

I'm hanging there. I switched Neurosurgeons and have an appointment with him Feb. 27. He is head of Neurosurgery at Barrows Neurological Institute in Phoenix, AZ. I researched his profile and it says chiari is one of his specialties including ALL malformations. I'm praying he may be able to help with all these symptoms.

Although I've only been on this site for about a year, it has lifesaver for me. Just have someone ay they understand...And Truly Understand! I am thankful for all support here!

[selmaS]

Hmm well that is something I can not say u r right ir that u r wrong....just have not heard that  or know if it is true...will look into it tho.

Me too...I was flat on my back for close to 6 weeks...ugh...I  still use my heating pad to help prevent it all over as I have no idea what triggered it.

[soccero]

its been quite a journey for sure! lol im ready for it to be over... anytime now..... lol still waiting lol when i originally joined this board i thought i might  be active here for a few months till i get through surgery then ill heal and be fine. meanwhile 24 surgeries and 4 and a 1/2 years later and im still here with some life long friends who i am forever thankful that i met 4 and 1/2 years ago! im so glad for this forum!!! <3 how are you??

[soccero]

im glad your hip is doing better now! idk y but for some reason i thought eds people were excluded from ra maybe i made it up lol quite possible lol

[selmaS]

  Hi !!  : )

  How often do u have the hip issues?

[hevnw8s]

Hi selmaS!   How are you doing Molly? I have a lot of the threads and you have had quite the journey. I pray you are healing well

[soccero]

:( im sorry :(

[selmaS]

LOL....my hip is doing fine for now...knock on wood....

Many of my muscles are tight, but that I was told is due to how unstable my joints are my muscles are compensating to help hold me together....

Not sure if we as EDSers are excluded from getting RA...this is an area I need to do more research.

[hevnw8s]

Not really. It's an ache so deep that nothing takes it away. I'm pretty much a mess. I used to tell the guys I worked with that if they were having a bad day, just look at me, it could be worse! Uggghh!

[soccero]

im so sorry to hear that! does anythignhelp when ur hurting?
molly

[hevnw8s]

Hi Molly. I have had bad hip pain in my right hip for years! There are times when I sit too long or sit a certain way and when I stand up, I can't put any weight or pressure on it. Can't walk. I have to lay down and try to stretch it out and then get back up and limp it out. lol  I walk until the pain goes away. It happens at no particular time, but a lot when it's cold. I'm not sure if it is related to my chiari or syringomyelia??
Kim

[soccero]

oops sorry sent that too quickly. hows ur hip now?? hope its better!!! <3

[soccero]

is ra the blood one? cause i thought that was the one people with eds do not get. no my dad does not have eds he is absolutely tight as a drum lol he is really hard on his joints physically
molly

[selmaS]

  Hey Molly....I was having hip pain around Christmas, but I did not lose ROM, ...just had awful pain so much so I could not sit...

I am sure it is not the same issue u r having tho....I think those with EDS and Chiari are prone to  RA... the osteo arthritis could be an issue as we do not absorb calcium and Vit D as we need...so I know an absorption issue could lead to this problem. Does ur Dad have EDS?