Hello to all of my new-found friends!
I had a neurological workup because I had 3 seizures in 3 years, and was diagnosed Friday with CM1. The first 2 seizures came after I passed out and hit my head. The last thing I did before I passed out was .... I looked up! I hit the ground, hit my head, then had seizure each time. I always believed the seizure was related to the looking up, but thought it was a cardio issue, and I resisted seizure meds. In Oct of this year, I had a brain fog/sea sick kind of feeling that I now believe was due to CSF build up; but I laid down, then had seizure.
Neurologist at Mayo Clinic in JAX found the CM1 on the MRI and has referred me to NS at Mayo. But the doc still wants me on seizure meds.
Has anyone else had seizures related to CM1? Or is it really possible I have separate seizure disorder, too? Many questions have been answered once I started reading about CM1, but more will be revealed after additional tests in Jan., I am sure.
Thanks to all who participate in this forum. Information has helped diminish the fear factor alot.