Wow - I get made fun of ALL the time for constantly moving/scratching/rubbing cause my skin gets creepy crawly feeling all the time. It usually feels like there is a tiny bug crawling on me... sometimes a cob web or hair, but nothing there! I attributed it to dry skin, but lotion never seemed to help.
MRIs are so difficult for me cause I want to itch and I can't move - I do a quick rub down to try to calm my skin so I can lay calmly.. then I try to sleep... lol... with loud banging around my head.. drives me nuts!
I do get a "burning poker" feeling in my shoulder area. Sometimes with the crawling feeling and sometimes on its own. I also get a nonstop ache in my whole shoulder and arm after the hot poker feeling passes. It can last for days or weeks.
We all seem to get crazy feelings at one time or another.
i have for yrs felt things was crawling on me i would be asleep an my x husband would tell me about how he had to actually hold my hands cause i tore at my skin an saying get the bugs off thats 1 of the reasons i stopped taking sleeping pills but i always thought it was due to me having a phobia of bugs until just recently i noticed im not scared of them well except spiders but i still have the problem but now its also while im awake but 1 thing i didnt see from anyone is i get a burning feeling with mine along with the crawling feeling an no matter what i do i cant get rid of it but i due get times that i dont feel it an the worse spot is around my l shoulder blade
does anyone else have this feeling r is it just either crawly r wet r both?
Haha, I've gotten out of bed for the crawlies too - but I got out to go through the sheets to see if something was really there! There never is.
Lisa
i also get it, i hate it, idrivesme nuts, yes i would jump out of my skin if i could, i have on occassions gotten out of bed to see if it helps, i cant remember if it did lol
Do you have SM as well? If so it may be that the syrinx is causing pressure on a nerve.
Stormy