Aa
Aa
A
A
A
Close
1352348 tn?1315550254

Going to Wisconsin Chiari Center this week!

We are heading the WI Chiari Center on Sept 11th..  I have mixed emotions about the whole thing!!!  After soooooo many years of being told "I don't see anything Jen" and  "there is NOTHING wrong" and "it's just headaches, EVERYONE gets them" It seems too good to be true that someone REALLY believes/understands there is something actually wrong with me!  I'm very nervous that I will get there and the doc will say those very things to me..  :-( and then I will be right back where I started......  UGH!  Damn doctors how do they have this much control over us?!?!?!?!?  Anyways, its a 10 hr drive!!!!!!!!!!  YIKES  and we are taking our 2 yr old and 5 yr old..  OH Lord I think we are nuts!!  hehehehe  We are gonna try and make a mini vacation out of it!!!  

We wanna go to the Cheese Mart and eat and get CHEESE of course!!!  

Well I hope Dr. H has some answers..................
5 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Im 17 nd have a cm1. I just got home from the winsconsin chiari center thursday. Dr. Heffez and Dr. Connor are both really nice. Dr. Heffez really seems to know what he is talking about. I worried the same thing. I wish you the best of luck and dont forget the milwaukee zoo!!
Helpful - 0
1352348 tn?1315550254
Thank you!  I seen that the weather was supposed to be good!  We can't wait!  However I am still dreading the road trip there and back.  *sigh*

Helpful - 0
Avatar universal
  I work at Columbia/St. Mary's in Milwaukee and I am a patient of Dr. Heffez in the Chiari Clinic.  I hope he can be of help to you. He is a very kind man.  Enjoy your stay in Wisconsin.  The weather is supposed to be perfect next week.  The hospital is right near Lake Michigan. Good Luck and have a safe trip. Go Packers!!
Helpful - 0
1352348 tn?1315550254
Thanks Selma!  I hope I get some validation and some answers and everything in between!  hehehe  

Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Congratulations...validation is so important for us as too many have had "the royal chiari runaround " for far too long.

  Safe travels and enjoy ur cheese : )

    "selma"
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease