Hi and welcome to the Chiari forum.
We do have a list of Drs for you to use to research Drs.....you are right in that you need to find a NS that is a true Chiari specialist....too many Drs do not know how Chiari can and does affect us......
Only more testing will help determine what course of action you will require BUT I had surgery to help prevent the formation of a syrinx so, I feel you may be a surgical candidate....but make sure it is a true Chiari specialist.
The list I will post here is not a referral nor an endorsement of those listed it is meant to be used as a tool to research Drs. The list was compiled by the members here of Drs they have been to, treated by and liked.....
CALIFORNIA
Dr. Langston Holly
Dr. Ulrich Batzdorf
UCLA, Westwood, CA
UCLA/Santa Monica Medical Center
Paul S. Jackson, M.D., Ph.D.
Palo Alto Center
795 El Camino Real
Level 3, Lee Building
Palo Alto, California 94301
(650) 853-2919
Dr. Jorge Lazareff, MD
Ronald Reagan UCLA Medical Center
200 Medical Plaza, Suites 140
Peter Morton Medical Build
Los Angeles, CA
(310)794-7700 Patient appoint.
Dr. Samuel F. Ciricillo
2800 L Street $5
Sacramento, CA
916-454-6850
Be advised you may have to travel to get to a specialist.