So, no matter what the diagnosis - it may be multiple (correlated) diseases or conditions.. (smile) . Is that the plight we're deemed with (smile)? Things could be significantly worse - I assume! (smile)
I am here just taking it all in... So, you didn't have lupus in the end SeimaS?
I am back again... Of course, I feel sad because my doctor also told me that my ANA markers indicate lupus or something in that family. My mind is so boggled by all of these details, Chiari, lupus, dry eyes, digestion problems, incontinence in many spheres, seeming to be fluid in my foot - (joint inflammation), neck pain, eye pain, headaches, and a myriad of other medical problems that come and go... My husband is telling me that because I have faith, I should not feel 'sad' but embrace each moment. Another friend is telling me something similar, but I feel sad and I want to cry! (smile) Adult as I am, this whole situation of being diagnosed with something that I don't really understand pushes me to a 'faith level' that has dimensions that I've never delved into! (smile) I have to collate everything and then in some way - allow something greater than myself - help me to deal with the resources that are available. Your advice here on the forum is assisting me in dealing with what questions I have to ask my support team and what resources I must gather to better help myself. Thanks to all!
Believe it or not I have been told I am borderline for Lupus....and that is the reason I was sent in for more testing after a drop attack....as I required surgery on my knee and ankle after the fall and my knee surgeon sent me to a rheumatoid Dr and he was ruling lymes, MS and lupus out when they found Chiari....but they also found EDS, tethered cord, and Hashimoto's///
I must also note that my blood work revealed a positive ANA and it appears to be an indicated for a form or low- level lupus. With Chiari, I wonder how complicated my life will be now.
I know just how u feel, just a validation that yes u have something and u were not going off the dock...lol...
And it is interesting just how many feel the same way after a long search.
hang in there and keep us posted
My internist is doing some research too and I know that together with this forum, I can create and collate resources for my area. Just getting adjusted to the idea that "I have something" and I have to cope with it. This is indeed a beginning for me. Having been suffering for two decades and finally finding some resolution - or a route to some type of resolution - is consolation enough for me today - maybe not tomorrow.