Aa
Aa
A
A
A
Close
Avatar universal

Finally got answers

I have been with weird symptoms ranging from eye, to balance issues to weird heart rate and blood pressure spikes. Dr adada at cleveland clinic here is florida took a look and ordered a second mri because the old one was from 2015. After he looked at the new one said i have to be thankful since it did not herniate more or progressed. He also said that most of the symptoms are related to chiari but my tachycardia and heart issues he wasnt so sure but that he dis not know since the nerves all go through there. He recommended PDF without duraolsty in my case and I’m waiting for a date of surgery. Most likely beggining of january. Odds are 90% to improve and 10% to be the same or maybe have more symptoms. Im pretty confident I will be alraight and live the rest of my life with a better quality. Anyways wanted to give an update. Hope all is well with everyone m. Happy holidays!
2 Responses
Sort by: Helpful Oldest Newest
20832776 tn?1528172439
I don't have an answer but will they see anybody that's already had decompression surgery first or ready I'm having trouble finding me another neurologist and I'm having symptoms coming back
Helpful - 0
2 Comments
I’m so sorry your symptoms are coming back. Where are you located? This doctor is in florida
I live in north mississippi .any suggestions? I've heard of the Cleveland clinic
620923 tn?1452915648
COMMUNITY LEADER
Hi....

The PFD surgery that does not open the dura typically doesn't have the best long term results and many need to have another surgery with the more invasive procedure opening the dura.

POTS is a related condition to Chiari and could cause the issues with your BP...Postural Orthostatic Tachycardia....(SP?)

Also you should rule out Ehlers-Danlos Syndrome.....
Helpful - 0
3 Comments
Trying to find a doctor close enough that I could go to the Y actually see me or check me out any suggestions
May I ask what area you can travel to....are you in Florida? What part? There are Chiari specialists down there.
North MS..
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1331027953
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease