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Finally got answers

I have been with weird symptoms ranging from eye, to balance issues to weird heart rate and blood pressure spikes. Dr adada at cleveland clinic here is florida took a look and ordered a second mri because the old one was from 2015. After he looked at the new one said i have to be thankful since it did not herniate more or progressed. He also said that most of the symptoms are related to chiari but my tachycardia and heart issues he wasnt so sure but that he dis not know since the nerves all go through there. He recommended PDF without duraolsty in my case and I’m waiting for a date of surgery. Most likely beggining of january. Odds are 90% to improve and 10% to be the same or maybe have more symptoms. Im pretty confident I will be alraight and live the rest of my life with a better quality. Anyways wanted to give an update. Hope all is well with everyone m. Happy holidays!
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20832776 tn?1528172439
I don't have an answer but will they see anybody that's already had decompression surgery first or ready I'm having trouble finding me another neurologist and I'm having symptoms coming back
Helpful - 0
I’m so sorry your symptoms are coming back. Where are you located? This doctor is in florida
I live in north mississippi .any suggestions? I've heard of the Cleveland clinic
620923 tn?1452915648

The PFD surgery that does not open the dura typically doesn't have the best long term results and many need to have another surgery with the more invasive procedure opening the dura.

POTS is a related condition to Chiari and could cause the issues with your BP...Postural Orthostatic Tachycardia....(SP?)

Also you should rule out Ehlers-Danlos Syndrome.....
Helpful - 0
Trying to find a doctor close enough that I could go to the Y actually see me or check me out any suggestions
May I ask what area you can travel to....are you in Florida? What part? There are Chiari specialists down there.
North MS..
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