HELP

[MissingLifewithKids]

Will I ever be the person I was before the symptoms took over my body. I was diagnosed with Chiari  Malformation Dec 12, 2010 The Headaches the Pressure the Pain in my neck and shoulders and down my back the falling down the forgetfulness the concentration problems I can't take it anymore  I miss playing with my kids and laughing. I don't remember the last time I laughed  HELP PLEASE

[martha274]

hi, i was dx last year in nov,and had surgery in dec of last year. i am sorry you are having such a rough time and feeling upset. i can understand your feelings, as i have had these in the past.
but, things will get better, and you have to have faith you will be able to be play a role in your childrens life. i have 3 myself and learned that you have to stay positive no matter what.
this forum will also help you.
i wish you luck, and peace of mind.

[selmaS]

  I know just how u feel....it can be frustrating to not be able to do what we want or to feel we r letting others down.

Were u able to find our list of activities to avoid in the Health Pages? If not let me know and I will get the link for u.

[MissingLifewithKids]

  I try not to stress out.

No I don't have a Chiari Specialist.

I did not know about a list of activities to avoid?
I was told rest rest and stay inside. Don't get to excited.

My son is 12 and my daughter is 8. She is always asking me if I'm hurting and wishes I felt better so I can play with her like I used to.
That is why I get frustrated.  

[selmaS]

  Stress can add to triggering symptoms....

Is this a Chiari specialist?

Did u see the list of activities to avoid with Chiari?

How old r u kids?...when my DD was younger she had issues with my balance or lack there of as well....we got thru it and u will too, They understand more then we give them credit for,

[MissingLifewithKids]

Hi, Thank you for responding. I have had 4 mri's last one in march I just went back to my NS on the 4th. Because it has been worst.  He is sending me for a cine mri and some other tests.

I have been avoiding activities beause Im always falling over or falling down. Its embarassing my kids are always asking why do fall down everyday why can't you talk right today. Its frustrating.

[selmaS]

  Hi and welcome to the Chiari forum.

U said u were dx'd with Chiari, have they ruled out related issues, and were u ruled out as a surgical candidate?

Once u r dx'd more testing should be done to see how the condition is affecting ur overall health. A CINE MRI, a thoracic and lumbar MRI, u want to know do u have a CSF obstruction, a syrinx, disk issues, tethered cord, ICP, POTS, ehlers-danlos...sleep apnea, and go from there.

Research Chiari specialists to find the right Dr for u, having that Dr that is well experienced is key.

Since 2010 what treatment have u had , PT, meds...etc?

Have u had a MRI since?

Do u avoid certain activities since getting the dx?