Ha not from chiari?.......

Question

SOOOO after a few tests and ongoing headaches 8 months post-pfd... now my dr thinks that i have hypoglycemia and that the surgeon shouldnt have ever done the durgery bc it wasnt the cause of my headaches... anyone been through anything like this??

selmaS · Answer

Sounds like many of ur symptoms could be chiari and or hypoglycemia, but I do not think it rules one or the other out.

   "selma"

karalee85 · Answer

i get palpatations
sweating
Mood changes,
Confusion, and difficulty in thinking, 
Blurred vision, dizziness sometimes
headache.
lack of energy.
Poor coordination.
Fatigue,
and im always tired but cant sleep

selmaS · Answer

Odd bcuz isn't that a symptom of hypoglycemia?

 Here is a list of symptoms:

 nervousness,
sweating,
intense hunger,
trembling,
weakness,
palpitations, and
often have trouble speaking.

  Do u have ne of these?

karalee85 · Answer

no. actually.. no lightheadedness or nausea..

selmaS · Answer

Well I have been dx'd hypoglycemic  yrs ago too...when I was pregnant with my DD I was told this...but it did change over the yrs...only to find I had the Hashimotos and the chiari so I really think somehow it plays into it.

 DO u get light headed a lot?

   "selma"

karalee85 · Answer

this new dr did a 5hr glucose tolerance my #s were 
after fasting for 12 hrs -77
30min after drinking the juice 102
30 mins later 89
1 hr later 70
1 hr later 54
1 hr later 45
final number 41

for a normal glucose test, your numbers should be, respectivly,
70-80
120
110
100
80-90
70-80
70-80

so you can see, mine is super low. he actually calledit severe hypoglycemia
but he has not done the thyroid test.

selmaS · Answer

See they did a urine test on me...hmmmm 

 Well even now, did u have the glucose testing now?.....or the thyroid test?

  Sigh...Drs !!

    "selma"

karalee85 · Answer

Selma.. no to all that..

selmaS · Answer

Didn't they test ur urine?...that would indicate a need for a glucose test....

 And have u had a thyroid  test done...TSH, free T3 and free T4 and TPO antibodies...this is for an auto immune disorder  not found if they just test the TSH.....and that would explain a weight gain...with all the testing they did on me this was found.,...I have Hashimotos thyroiditis.

  "selma"

karalee85 · Answer

this dr doesnt think this is a new problem, and since right now i have no relief and im exactly the same as pre pfd but with more pain from my neck n new occipital headaches, i just dont know what to think.

karalee85 · Answer

nope  no fam history.. he thinks this is whats caused the headaches to get bad since last summer, if it is then it could also be a major factor in my weight gain too.. he did a test on me today that proved i have headaches that are mimicing migraines not true migraines.. 

they did tests before the surgery but sa far as i know none tested my sugar, i was under the impression they were just tests to be sure i was healthy enough for the surgery, you know the day before pre surgery tests? other than mris  ct and xrays thats all i got... and the only true test for hypo is a fasting blood test and ive never done that before

selmaS · Answer

Wow, I am surprised as I had a slew of blood work done b4...even chest xrays and  heart tests....

 My PCP did insist on the chest x rays...but, it was something Dr I also wanted done.

 In fact, I was sent a RX of all the blood labs that needed to be done, and when I went up the day b4 they did not have results of 1 of the tests so they drew blood the AM b4....

 DO u have family history of this?

 Is it possible to be something new, post op?

 Just wondering......

    "selma"

karalee85 · Answer

dr b did not test for ANYTHING before the surgery.. and he only had tests done that would confirm chiari... also, i have never in my life had my glucose tested.

selmaS · Answer

Hi...no, but I know that many Drs do not feel surgery is necessary for those with it...so, it could be that u have something in addition to the chiari.

 I have to ask, didn't ur Drs test u for hypoglycemia b4 surgery?...Most Drs will test for all conditions that could possibly fit...and blood work should have indicated an issue as well as family history.

 "selma"