I posted on the pic, do u have the ones that u were DX'd with Chiari to compare?
Posted! I have about 800 more if that one isn't good. :)
Okay...I'll try a clear side shot?
U can post it to ur profile and I can explain under it....as long as it is a slice I am familiar with...lol...
Selma,
My husband keeps asking me to show him how the herniation isn't there anymore and I'm looking through my MRIs lost. Can you tell where I'm supposed to be looking exactly if I send you a screen shot via email?
I do not blame u one bit....it is sad to leave those things behind, but the older we get the harder and longer it takes or seems to take to heal from fun,...lol...and sometimes it is no longer fun.....
Thank you, Selma. I appreciate it.
And from now on, I've sworn off all head-jolting rides :)
I use to like going to amusement parks, but I started to be affected by the rides, so I stopped going....that was yrs ago...I do miss Roller Coasters, but when u hear of these accidents that happen it does not seem like something I would want to temp faith over....
I hope the PT helps u....please keep us posted on how u r doing.
I am starting cognitive therapy for my memory problems next week and now that the Chiari isn't an issue, I can do REAL physical therapy for my occipital nerves and neck disks--before they wouldn't do anything serious because of the herniation.
The ride was at a resort and no one's ever heard of it--it's basically a luge.
Goodness what ride was it...sounds very scary.....
U should keep a close look on those disks as they can shift and cause a CSF obstruction very similar to the cerebral tonsils when they r herniated....so symptoms would also be similar...
Mayb u will have some relief of more of ur symptoms in time....even post op, it took closer to 2.5 yrs b4 I saw the most benefits from surgery...
An amusement park ride broke and I flew out and was slammed, unrestrained, into a wall at about 35 mph. I was actually told by many doctors I'm very lucky to not be in worse shape. (I definitely pissed off my occipital nerves, fractured a rib, blew a couple of neck disks, got a bad concussion, and got a good bit of road rash...).
I've been tested for ED syndrome bc of the Chiari finding and was told that was not an issue. Because of my height, they thought I might have Marfan, but my aorta is perfect and no caved chest or hyperflexibility. I also have two blown cervical disks from the accident (c 4/5 and 5/6, I believe, but they were mild, not surgical).
I am happy about no surgery, too!
Yes, there is congenital and acquired Chiari for lack of a diff term....as it is not a true Chiari if the skull is not malformed but the symptoms are the same....and some do not resolve on their own and do require the same surgery....
U r lucky it resolved...I would wonder what injury u sustained that u have continued issues....in that there may be something else underlying...loss of cervical lordosis (whip lash)....cerviocranial instability...from Ehlers-Danlos...if u have that...but something to look at as well as disk issues that could be compressing a nerve.
I am so happy for u that surgery was not necessary....do get future MRI's especially if u have ne new symptoms.
Selma,
I have very blatant occipital neuralgia from the accident--it is always very painful. And I've had some other issues stemming from Post Concussion Syndrome (textbook: dizziness, grouchiness, confusion, stuttering, memory problems). The funny thing is, my neck and brain MRIs lasted two hours with no break, so I KNEW I was going to have a horrible occipital headache today and I do...but I'm so happy I don't have a Chiari that I don't even care! :)
So, if I am understanding correctly, a true Chiari Malformation is when your skull and brain are mismatched genetically which forces the tonsils to herniate while a tonsillar herniation can just be from a trauma or swelling?
Is that right?
Hi Missy....it is possible for the tonsils to retract if what u have is acquired Chiari...or low lying tonsils from a MVA...this has happened b4....
Chiari Malformation is too often DX'd when there is not a true Malformation of the skull...just a herniation......a blunt force trauma can cause the tonsils to herniate, which is not how a true Chiari herniation occurs....
Not sure if I am making sense....but, I have to ask are u feeling better too?