Our daughter is 3 1/2 years old. She's been dx'd with Right Coronal Craniosynotosis (CVR and FOA to correct at 10 months), PFAPA (T&A seemed to have worked), recently diagnosed with Breath holding spells (3 in the last 4 months) and today--- Chiari Malformation 1. Her cerebral tonsils are 7 millimeters into her spinal canal. Is this similar to anyone else's experience? Can we anticipate another surgery?