Hello, after 3 months of constant headaches, tingling limbs, muscle weakness and blurred vision I’m finally getting somewhere. Yesterday I was diagnosed with type 1 Chiari Malformation, but have been told that because I’m so young they don’t want to risk surgery. I am also being investigated for having idiopathic Intracranial hypertension and have been told that the diagnosis could take up to another 3 months. In the meantime I’m receiving no help/treatment- is this normal?
I’m also really struggling with the idea that this will be my reality for the rest of my life, does anyone have any suggestions on how to deal with the diagnosis?