Just got my MRI results in

[Benny83]

And my tonsils extend 15mm below the foramen magnum, not sure what all that means and my dr hasn't called me back.
But is it good or is it bad?

They also found a cyst not sure if that is normal or not but my dr never told me about that.

Thanks,
Ben

[selmaS]

It is possible....once they hand u off they feel u r no longer their patient.....I don't get that bcuz we still need a NL to monitor our condition even after we have surgery....if he , ur NL is not well educated in chiari he may not want to handle ur case.

Some just have a staff that does not forward info to the dr in a timely manor....so it can be a staff issue....I know u want answers, but they will come in due time...so try and relax the best u can...and keep calling.

"selma"

[Benny83]

I'm not sure if my insurance mandates it or not but I know the only place who has Chiari specialist around here says I need a referral.
Coul the NL not be calling back since he has referred me to an NS who just hasn't gotten back to me yet?

[selmaS]

for the MRI's u generally have to pick those up...they only send reports...call again and go to the facility that did the studies and they should have them ready when u get there.....going forward request copies when u sign in for the test and they will see u have it b4 u leave...takes approx 15 mins if that....

if u have a chiari dx u need a NS not a NL......and it deff needs to be a chiari specialist not a random NS.....does ur insurance mandate u have referrals?

"selma"

[Benny83]

I have copies of the report but the not the actual MRI, for some reason they didn't send that when I requested both.
I am actually going to have to get a second opinion since it has been 3 weeks since I have heard from my neurologist after I have left him countless messages telling him the meds are no longer working for the headaches and nausea.
I am hoping my PCP can refer me to a neurologist Monday when I go see him.

[selmaS]

Hi Ben...by standards 15mm is a large herniation.....but what is more important is the width and if it is causing a CSF blockage...overcrowding is also important.

The cyst can be a syrinx depending on where it is located...most are in the cervical spine.

Wait to see what he says......did u get copies of the MRI and the report?...if not call the facility and request copies in case u need to go for second opinions.

Good luck
"selma"