Horrible! And so very scary! I just had surgery to fix my patch so hoping I can get back within the next month or 2. If not I don't know what will happen... But thanks for the info and the support and I hope you find relief soon!
I hear you. My medical bills are outrageous. Dx'd and decompressed in 08 and have been a testing guinea pig since. Doctors keep saying by the book you should be cured. They test me for something and put normal on it because it didn't show what they thought but they don't put any footnotes in there saying what happened. Examples. EMG showed no carpel tunnel but didn't show that I have continued numbness, pins and needles, feeling of arms and legs, hands and feet went to sleep. Had a tilt table test and at 5 mins I had tremor and at 27 mins had an episode the nurse said she had never seen that looked like a seizure...but the report said normal for cardiac. My marriage fell apart, haven't finalized divorce because of insurance. Was short a few working credit hours for disability so they sent me down the SSI road. Been denied a few times and waiting for my hearing. Got the letter saying could be 20 days up to a year.