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18933372 tn?1469953193

Are some more dazed than confused with CM

I have recently been diagnosed with CM back in March. Does anyone know of someone to talk to or a support group to speak with who would understand how I feel or what I will have to face. Never been diagnosed with something that actually affects my head. I know many people use to think I was crazy when I said my head hurt all the time. Someone please give me a start as to where to go because I feel like a test tube for doctors on top of a walking pharmacy for all the meds
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620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

If you are looking for a support group to go to where you can meet in person....I am not sure where in your area they might be.....but we are here and can help with the same info.

I can say I can relate as I know most others friends/family thought I was either making up my pain or exaggerating it....even Drs I met were not sure of my complaints....and I began to doubt myself at times.

My surgery for Chiari was back in '09 so I can offer you insight as to what I went thru, you may have a totally different experience that I did, so I can not say this is what will happen to you...but  I and the other members here can share our journey and offer ways to help navigate this condition
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