No Syrnix

[daisy68]

Well, I had my 2nd MRI which showed no syrnix however, he wants me to wait two weeks to come back to see him to check my symptoms.  I do have the 10-11herniation, and I think that he is just buying me time before doing the surgery.  My dizziness is much worse and I am unable to concentrate when it gets really bad.  I am going to call the hospital where I had the MRI yesterday and get a copy of the rportfrom the radiologists.  I only received a call from my NS nurse because he was traveling out of town and will not be back until next week and wanted to let me know that there is not a syrnix however he would discuss the rest of the findings next Friday.  I just pray that my symptoms do not get any worse.  This is miserable and because my daughter has had two surgeries, I do not want to tell my family and friends because they cannot 'see' my symptoms only hear me tell them about them....and I feel 'nuts' because how could this happen at age 40 right after my daughters second surgery.  Here we are at Christmas and I am running out of excuses for hiding from my friends.  They only found the Chiari by looking for a tumor or signs of a stroke to cause my symptoms, they were not looking for it. However, because my ENT knows what my daughter went through he found it in the MRI.  It is so great to have you guys to talk to.

[Shane99]

You shouldn't have to explain anything to your friends, but if you do - let them know that Chiari can be considered genetic. Not only is it not a surprise you have it, but anyone related by blood to you may have it and should get checked - see if they dismiss that! :D

But like selma said, No syrinx is a good thing. It may be confusing because of your symptoms, but consider it good news - just keep an eye on it. Even if you don't need surgery yet, you may someday. You should have an MRI every 6 months or so.

As for your age; 40 isn't very old to discover Chiari 1 - it often doesn't manifest itself for decades. It sometimes doesn't show up until some sort of head trauma "activates" it. I had never heard the words "Chiari" or "syrinx" before last April, when they discovered mine at 20mm (I had been in a car wreck 5 years earlier). And I was 37 at the time.

[selmaS]

No syrinx is good news....I don't know what else he may have found...or wants to discuss....stop thinking u r nutz.....drs have a great way of dismissing people in general....with fibro, CFS...and chiari as incidental findings...but it doesn't feel incidental. I am 49 and my chiari was found last Feb....ur age is not a factor.....I have been to drs all my life and was dismissed as stress and anxiety.
I am sure ur dr will treat u quickly if all indicate that need. Educate ur family and friends on chiari....they will be more supportive.The ASAP site or TCI site r both very informative.

It isn't surprising that u and ur daughter both share this condition......just u went longer with out it being detected.
Try and relax...stress will only make u feel worse.

If ur dr found u had a stroke or a tumor would u be avoiding ur friends?....y r u afraid to face them with this?.....it still requires brain surgery, and just because it isn't well know, doesn't mean this isn't as serious.Educate them, u need them now....do hide away.

Good luck
Godspeed
"selma"