Hang in there...praying u get some good news soon.
Thinking of u tomorrow when u got for ur tilt table test.....
Keep us posted
Thank you to everyone. I've gone through CT scans, MRIs, EEG, CA ultrasounds, heart echo, and met with a crew of doctors, cardiologist, pulmonary, neurologist, neurosurgeon and the internist here. No luck on good news from the tests, but still keeping hope. I should be having the table tilt test for POTS tomorrow and a sleep study after I get out of here.
reading your experience sounds scary.
I can only tell you not to stress yourself a lot and stay calm.
do have the tests..I think it will be fine .having them becoz that will help you gain confidence about handling it .
Best of luck and prayers in your name .
Another possibility is BI....have them look at ur odontoid and see if it is pressing into ur brain stem....
I also agree with Lisa in having ur heart checked.....I had mine done and am glad I did as nothing was wrong there but I have a place to reference if I do develop issues in the future.
Goodness how scary.....glad u r ok now!
Have u been tested for sleep apnea?....POTS?
Sorry I do not recall, u had surgery or not? If u have u may have yet another CSF obstruction....so do look into that as well as sleep apnea and POTS.
Good Luck and prayers sent ur way <3
Kurt....
So sorry for what is happening. I'm sure they are checking your heart, but make sure this is done very thoroughly. Did they tell you if you're heart rate was high, b/p low? There can be valvular issues.... Ask to be seen by their Electro Physiologist (EP), make sure he looks at your EKG. Hang in there. Ill say a prayer for you and your family.... Lisa