She complains that her head hurts. her stomach hurts her alot. she gets dizzy.and like I said before her seizures. That is it that we have noticed. The first time she hit her head and had a seizure..she would gag on everything we gave her. Even applesauce. She had a hard time eating.
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Well, u spoke with a nurse...there are NS's that have no idea the effect chiari has on people....u need a true chiari specialist to review the MRI's....and all her symptoms.....
May I ask what other symptoms ur DD is having?
"selma"
I would like to add that my daughter ONLY has seizures when she hits the back of her head. I had asked the nurse if the low lying tonsils could cause this and she told me NO. That they are unrelated. As I stated earlier in my post she said nothing was wrong with her. I just wish we could find the answer as to whats going on with our little girl.
U r right, but not all low lying tonsils produce symptoms or affect overall health...do have more testing , like a CINE MRI to see if there is a CSF obstruction....
No worries : )
I pray ur family has a Merry Christmas as well.
"selma"
Thank you so much!!! From what I have read about low lying tonsils it's nothing to ignore.Thank you again. Have a great holiday!!
Hi and welcome to the Chiari forum.
I would suggest u request copies of the MRI and the report and get a 2nd opinion and seek the opinion of a chiari specialist.....since ur DD is having seizures it is possible that it is related to the low lying tonsils.....
It can also have nothing to do with chiari, but, there have been many children and adults that have had seizures along with chiari.
Too many look at the size of the herniation, instead of the obstruction and symptoms....
We do have a list of Drs in our Health Pages listed to the bottom of this page...scroll down...use the list to research the drs to find the right one for ur DD....the list is not meant as a referral.
"selma"