PFD/Fusion Question

[actressmouse]

Hello All,
I am scheduled for PFD with fusion of C1,2,3 on 6/20 at TCI.  I am REALLY nervous about the fusion, more so than the decompression...I've been hearing HORROR stories of hardware coming loose, being rejected, not healing, etc....which, obviously, is the very last thing I need to hear right now.  I've also heard different things about how much movement I will regain ranging from "none" to "a good bit".  

I am in a conundrum here....any "sage" advice out there???

[actressmouse]

Thanks so much for your first-hand knowledge sharing.  I really appreciate hearing from those who have been there and are able to share how they responded to recommended treatment.  I trust my docs and know they have my best interest at heart.  Surgery has not been an easy decision for me, and I have a healthy respect for the decision making process.  However, I am losing more hearing and getting more neuro issues that are not going to get better unless I take action.  Sitting around and watching abilities leave me is not my style.  Thanks for the words of encouragement!

[cash242]

I had a fusion of c5 c6 which is not as many as you but will share my experience. I had pfd separate and that for me was definetly the most difficult recovery. My pain for fusion was less and recovery went very well. Tough just have to be very careful until everything is fused. with only one level fused I honestly can't tell much of a difference in rom except when looking behind my car when backing up which i just turn my while body vs neck. My fusion helped me so much I am 7 mo post op from it and doing great! I pray all goes well and that you get relief!

[irislita]

Hi.dont listen to horror stories and dont look them up!!! I most probably need fusion too and am very nervous if thats the case.but u have a professional team and u have to have faith in them.it is an operation and has its risks,but if risk is higher than the positive outcome they would not perform these things...i know its a rollercoaster ride before surgery...and ad selma said there a good stories...but they are less published as they go ahead with their lives.big hug for u

[selmaS]

  Hi, I know someone that recently had this done, and I know it sounded like she had more pain post op fusion then her TC release....it had me worried as I was told I need this as well...but she is doing well and in fact was released to drive...she does need some additional mirrors to help as her  range of motion is still limited, but who knows what will be gained once she is done recovering....

All I know is she seems to be doing well and it lifted my spirit's knowing she is doing this well.

Horror story's r made from those expecting miracles with ne of the surgeries they may have...

TCI is good with checking if u have EDS and knows how to handle issues of rejection b4 going into surgery,....most times rejection happens when they wait till post op to check for such issues.

I know it is scary...but if u look at not having it done, where does it leave u?