Not sure our conversation "flows", lol.
I can follow a novel or article, but I'll be darned if I can keep people--& their symptoms--straight. It's embarrassing. I don't know how selma does it!
Oh, I also rent movies that Ive already seen. Duh. Im not real fond of the cognitive impairment.
Anyway, Ive found that I needed to rest my eyes, a lot, maybe to rest my brain? I found that frequently looking into the far distance helps.
I would believe anything is related to Chiari at this point!
In the book "Contents under Pressure", the author finds out that his sore throats/ earaches are due to compression on the 9th cranial nerve. (My NS loans this book out, it is so good).
The pain in my ears & throat would be so bad, that I could just not believe that there was nothing to see.
My NS thinks that Chiari may have been implicated in my detached retina & eye pain.
Of all the drs Ive seen, it was the neuro-ophthalmologist who "got it" about the Chiari impacting my vision.
@ Jen, I hope your next appt goes well. I had every eye test available, & my eyes are fine, according to the tests! I expect that to continue now that Im decompressed. I didn't have a reflex in 1 eye. I still have eye pain though; my NS said it's due to nerves waking up.
A numb eye-- who would believe it.
I was speaking in general. One of my issues has always been vision even tho my eyes are perfect, lol. And I've never been able to understand things I read, not even growing up. Can't concentrate either.
Sorry I threw your post off track again, lol.
@ Mac - for me it was just my eye sight isn't as good as it was pre-surgery. I go see the Optometrist on Wednesday to see if my eye sight is deteriorated or if it is all in my head...lol (sorry I couldn't resist). Back to serious matters...when I attempted to read or spend any extended time in the computer I could feel the strain and it would start to give me a headache and my eyes would hurt and burn/sting. I have pretty much 20/20 vision and the Optometrist say I have astigmatism so I have sensitivity to light and she said my eyes r lazy. So mainly my glasses r for driving at night and for long periods of time on computer and/or reading.
Hopefully u won't experience any vision issues, my NS said it isn't something that happens all the time but its not a shocking side effect either. He just told me to wait 3-6 months to see the Optometrist.
Oh!!!! I just remembered that when I first came out of surgery my eyes were very blurry. I remember my parents coming to see me and my dad was wearing a t-shirt with some writing in it and I remember I couldn't read it...so just a heads up in case that happens. By the time I was released (48 hours I spent in the hospital) the blurriness was basically gone.
@ selma,.viva i was wondering how does the tonsils in the back of the throat relate to.chiari.. I was constantly sick as with sore throats and high fever as a child... it was my thing, always had a sore throat and chloraseptic spray ( if you guys ever used it ) was my prized possession next to barbie dolls... Is just coincidental that we all had the same.issues.. by the way i still have my tonsils and they are HUGE...
I am enjoying friends and family this weekend thanks! Yeah I have those same problems with re-reading paragraphs! I hope I am able to read. That would be unfortunate if I was unable. But I appreciate you guys letting me know because better to be prepared than not.
Yeah sorry I didn't mean to sound rude!! I was just super confused. But upon re-reading it i see the flow of the conversation. Thank you for the comments!
OOOh interesting! How were your eyes effected? I haven't heard anything about eyes being effected.
Aw thank you; that is so nice to hear, especially after getting knocked on my A** for the last couple weeks. Sometimes its so hard to be upbeat!
I have to hope that this too shall pass.
I planted peonies today--i ordered them months ago, so that I would have something to look forward to--even though I really wasnt in the mood. But it actually took my mind off me for awhile.
Id rather feel sick from gardening than feel sick from doing nothing, lol.
Did your mom recover from both conditions?
Maybe the only perk of aging is developing a whatev demeanor? :)
@ Viv, ur so awesome...love how u just go with the flow and make due with everything...u remind me of my Mom she has had Breast Cancer and Leukemia and she spent so much time in the hospital with the Leukemia. She just dealt with it and did what she could.
She's an inspiration and so are you!!!
We r so close in surgery dates that I love to hear how u r doing because I know we r dealing with a lot of the same things at the same time! Thanks for always lifting my spirits and being so positive!
<3 JEN <3
I am reading Much less these days; it makes me too tired. I thought that I would mourn this loss too, but Ive adapted--audio books, old time radio shows, films, watching the birds at the feeder (which I had moved on the deck).
I couldn't read pre nor post op. Still can't. I don't comprehend what I read unless I read out loud and then I still don't. I find myself reading one paragraph a million times before giving up. I have had this issue my whole life. I think its part of my cognitive issues?! Now that I know so much about chiari I def know I struggled as a kid due to it. At least it makes sense now ;) sorry to get off topic. Hope you are enjoying friends and family this weekend before surgery. It will help take your mind off it, hugs, Dana
Gla to hear u r in good spirits! U sound like me as far as ur attitude as surgery approaches! I was beyond ready as it sounds like u r too. I too got books from B&N but I went with the 2 newest John Grishams (my fave author) and a few Janet Evanovich (not sure if I spelt that right?) books. Unfortunately for me, I couldn't read post-op because my eyes have felt the effect of my surgery. BOOOOOO!!! I love to read and was so looking forward to curling up with a good book. Oh well, C'est la vie! I hope I get to snuggle and read ur books..u'll have to let me know how the S.King one is, I've been eye balling it myself...
Sorry I derailed your thread.
(If you didn't know, they used to remove throat tonsils from most children in the 1950s).
My cerebellar tonsils were cauterized, not snipped, but I don't know by how much. Your NS may find it necessary to do that, but it's not that big a deal, in the big picture.
No I know, I was responding to someone else that mentioned it on this thread...
If u re read the above posts u will see I had my cerebral tonsils cauterized....and it was necessary as I had overcrowding....
I was replying to Viv about a comment she made, sorry if u were confused.
Ummmm... I don't mean a tonsillectomy I was talking about the cerebellar tonsils for Chiari Malformations. But I did have my tonsils out when I was 14!
Good to hear the positive attitude. I had one tonsil electro cauterized, dr said when he opened me up it was necesary. We did not discuss it beforehand but they don't really know til they get in there, so I didn't have a choice. I haven't noticed any additional issues due to it. Make sure you have someone update us on your post op status if able. Hugs,Dana
I had a tonsillectomy and my adenoids removed when I was seven...for breathing with my mouth....I still remember that hospital stay.....no fun....and I was a mouth breather until I had my PFD...I can breath better thru my nose since that...not sure y....but I can, I do not feel like I am smothering ne more.
My cerebral tonsils were not snipped....just shocked in order to shrink.....
After i had my tonsils snipped, i couldnt spel or cpitalize anymore.
:)
This made me think of how they used to yank out the other tonsils, for "prevention". I used to get horrible sore throats afterwards anyway; I can still remember hallucinating from a high fever when I was 8.
I didn't want this unnecessary procedure for my children, and doctors in the next generation did not recommend it routinely.
So, go figure, then BOTH children had to have tonsillectomies, as adults. My DD's dr said her tonsils were "giant pus-filled sacks". Sorry, gross.
I echo Viv's sentiments I am glad u got a 2nd opinion....and that u r more relaxed about the decision.....
I pray u get the outcome u imagine : )
BTW- I had my tonsils cauterized.....for me it was necessary to get them out of the way as my odontoid was not totally retroflexed but was causing an issue itself so they needed as much room as possible.
Good to hear that you are reassured. Im glad that you are going into this with the best attitude!
(I questioned having my tonsils cauterized, but my NS said that I didn't need them, so.... I decided not to micromanage his job, lol).