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10169340 tn?1415846161

Short term memory loss

I have posted here before and never thought of  to ask, I have CM1 and CCI ( still waiting on insurance to approve surgery) but have had in the past year really bad short term memory loss as well as the dizziness...does anyone else have this? I have been to several doctors since August  a headace specialist and a NS ..They say it is not related to the Chiari...but could not tell me what it is from...and honestly the 2 of them could not get  me out of their office fast enough.
Selma you always seem to help out..do you know?  Thanks in advance. :)
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620923 tn?1452915648
COMMUNITY LEADER

   No  worries   :  )

  That  is why  this  forum  is  so  important  to me,  so  no  one  feels  alone....and knows  they can  talk  with  others  that  really  understand.
Helpful - 0
10169340 tn?1415846161
Thank you  :) you are a BIG comfort to all of us !!!! Some times no matter how much support you have around you from family and Friends & I know I am lucky because I am have a lot ...I still feel lonely because no one really knows how you feel..  Thanks again <3
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Do  make  sure  related conditions  are  ruled  out  B4  you  have  surgery  as  they  can  affect  how  you  feel and  heal  post  op.

No  you  are  not  crazy....but it  is  sad  so  many  Drs  think  we all  may  be.....sigh...hang  in  there  and keep pushing  for  answers,
Helpful - 0
10169340 tn?1415846161
Thank you guys so much !!!! I do have a good NS, but when I ask him  other questions like the memory loss or anything else he suggested to find a locale neurologist, (because he is 3 hrs away from where I live.) that can help me.. and the fist guy I saw sent me to a neuropsychologist for an evaluation test..that came back perfectly fine!! I GUESS I AM NOT CRAZY .. The 2nd  dr I saw didn't know what to say and told me everything I said, the dizziness,short term memory
loss,choking,blurry vision, we're not related to Chiari..both doctors could not get me out of their office fast enough!!! Now I am seeing a new Dr who seems to have taken some interest in me or pity ,I'm not sure?? but I told her all I've been thru and how the short term is getting worse so she is going to do more test ( an EEG) just to rule out this week.. But thank you so much for responding!!! My surgery was scheduled for Nov.4th and got denied again ,these insurance companies really think they have the rite to hold your life in their hands..
Helpful - 0
9432311 tn?1432825085
The thing that will make you frustrated the most is when people jokingly comment that memory changes are a part of aging and that we all experience it some time. I have always had a memory like an elephant. I can remember seating arrangements of classes I had in high school! (And today is my 51st birthday)! But the short term memory issue that is bothering you is a very real Chiari-related symptom. I am not knowledgeable about the anatomical explanation behind this memory loss. What I do know - as Selma says - a true Chiari specialist will know the validity of your symptoms - and give you the office time that you deserve.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Yes,  the short  term  memory  issue  we all  tend  to  have.....and trying to  find  words at times....frustrating  as  all  get  out.

Once   you  get  to  a  true  Chiari  specialist  you  will  see that you  have  more  related  to  Chiari  then most  Drs  will  acknowledge....
Helpful - 0
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