Hi and welcome to the Chiari forum.
I am so happy u have found this site to be helpful and informative......but sorry u were in need of both.
There have been several members that have had siblings as well as parent and children that have had this condition....
And I must agree, Chiari itself is not rare, well informed and experienced Drs are.
Thank you and thank you!
we have been finding more and more relation to family.
A Dr. I saw for pretty much life long headaches and now "gargles speech" after a Chiropractor told me I had pitting edema to the back of my head, told me Chiari isnt genetic so you don't have it. When I wasn't saying I did but the symptoms were oddly similar, made me wonder.
Then while waiting for MRI results after CT showed 6mm hernation then MRI showed 11mm. My Primary said my headaches wouldnt be cause by Chiari. Ummmmm I am not an expert, yet, but I would have to disagree!
I have watched my sisters battle to get answers then finding the right Dr to getting results. With her support I am becoming more aware and not taking what Dr's say as Final answers. Just wish we all did not have to do that and could trust them all.
My oldest daughter was diagnosed with Chiari and had the surgery. I was diagnosed this year and need the surgery as well. One of my grandchildren has Clipple File with Scoliosis (a related condition), my youngest daughter has a lactaid pituitary tumor. All related? Yes, very. I'm amazed everyday how under recognized and under treated this condition is! Lisa