Not exactly as you describe, but pre-op I would often get what looked and felt like a very severe dermititis. Most often it was on my face, arms, right leg and hummm the only way I know how to say this properly on this forum is the area where a man has the thinest skin. Sometimes it would last for days other times for a few hours. The numbness only seemed to effect my face and neck though not the other areas. Post op it has happened just a couple of times.
It was always accompanied with dry flaky skin. I mean really dry, skin would fall off my face around the nose, eyes and again in that thin skin area.
It if is the same thing, the only relief I found was to turn the shower up as warm as I could stand and just stay in there. It burns at first but eventually calmed down. Wife used coconut butter on my face to prevent scarring, that really burned. It did calm down the skin though.
Hi Ray...sorry, I do not experience this...and thanks Wolf for being candid.....I am sure we all appreciate that ur men have issue just like us woman and we have covered our issues....
I do tend to have drier skin , especially on my face, but I am sure mine is associated with my Hashimoto's....
I hope u get answer's and can get relief for it as I know it is not something u want to continue to deal with.
Hi Wolf, I get the dry skin on my back but not on my hands. I find that the hot shower helps as well. I will give the coconut butter a try. My concern is that one time when it happened and I went to the ER the doctor was concerned about skin ulcer development due to the CM.
Thanks selma, I do get granulomas in the arm and groin area from time to time, these are like abscess and have lead to cellulitis in the past, I dont know if they are related to the CM.
Looks like something we need to research.....
Hi Ray...I do get severe red patches on the back of my hands and on the palms. I was dx with eczema about 15 years ago but this red sunburn like thing has only showed up I'd say in the past 5 years. For me, it can be super itchy and very, very red so much that my DH will notice it and be shocked on how bad it looks. Mine flares up and down, and with the itchiness and burning..I just figured it is worsening eczema. The steriod cream does seem to help it settle down but never completely gets rid of it....and now the skin on my hands is extremely thin.
I have just found out that I have Hashimotos too...and I am wondering if that if contributing to the problem...a question I will ask my ENDO. As for numbness, my hands are numb and tingly on a daily basis so but I don't think just on those specific areas. Oh...and my palms and knuckles have hardened skin on them from the repeated occurences...
I have had several cases of cellulitis in the past too but it is usually b/c of the poor condition of my skin..it is easily broken and there are aways cracks in it. I know I have to get to a DR asap when I see a red line going away from the area.
Does any of this sound familiar to you?
Hi Carolyn, lol it all sounds familiar to me, the hard skin on the knuckles is something is something I never thought about. Like selma said Looks like something we need to research.
Have you ever looked into your thyroid? That is one cause of having very dry skin.
Also, have you tried prescription steriod creme? I use Bethamethasone 0.1% ointment and it does help if I am good about putting it on. Maybe something you can try?
I'll let you know what I find out!
Thanks Carolyn, had the thyroid checked last year and it was ok. I was on Dactcort (sp?) a steroid cream but it did nothing.
I remember seeing somewhere that people with issues like CM & SM are at risk of developing skin ulcers because of nerve damage, people need to be aware of this but there is very little that I can find on the web about it.
I know!! I tried looking too and came up with nothing! Hmmm...I will have to think on it..sometimes it's all in the words you google!
I could definitely see if being caused by a flare up of nerve issues...will have to keep looking :)
Ok so I think I actually found something...and it opened up a whole can of worms for me!!
Try googling "neurogenic rashes" I did and this site about Fibromyalgia came up. It is a list of symptoms put together by FM suffers and as I started scrolling down the list...my jaw dropped open. I couldn't believe that I am experiencing so many of the symptoms on that list...the ones that I have been trying to get explanations for!! Like why it hurts to just poke my leg, the muscle twitches, facial pain, even the dry eyes and mouth!! I know early on in my dx when I was googling Chiari I came across some research that a lot of Chiarians develop a secondary form of FM and after reading this...I totally believe that is true. Anyway if you scroll down mid way you will get to:
Neurogenic inflammation: rashes and hives, inflammatory sensation, with rashes that may be severe, severe itching with inflammation - initiated by nerves.
The more I looked into FM...the rash thing kept coming up! I started thinking about it and it makes sense...they don't really know what causes FM but they think it has something to do with how the CNS is processing the sensory signals IE(interpreting a tickle or touch to be pain). So that would totally make sense to develop the same type of thing from CM. Honestly, I was totally floored when I read the list....I encourage all of you to take a look and see what you think!
Also Ray...google the "neurogenic rash" b/c a bunch of info comes up...too much to put here.