Syringomelia Long Term Disability

[Jennifer73084]

Has anyone left their job on short term and then long term disability for syringomelia? I am finding it hard to work with all the pain and spasticity. My nuerologist recommended I do this and said he would support me. I am not sure if this condition qualifies since it is so rare. It qualifies on federal disability but it seems I would make too much from the LTD 60% pay to qualify in Georgia. Anyone has some experience in this?

[retiredat38]

This August I will be 2yrs post-op. Prior to the decompression surgery I was at 18mm with syringomelia from C2 to C6.  I still have a syrinx at C2, but what determines your disability are the symptoms.  I was granted disability. I have additional new post-op symptoms.


Below is where you can get the disability information for syringomelia.

http://www.ssa.gov/disability/professionals/bluebook/11.00-Neurological-Adult.htm

Disability Evaluation Under Social Security

11.19 Syringomyelia. With:

A. Significant bulbar signs; or

B. Disorganization of motor function as described in 11.04B.

11.04B. Significant and persistent disorganization of motor function in two extremities, resulting in sustained disturbance of gross and dexterous movements, or gait and station (see 11.00C).

[selmaS]

  Hi and welcome to the Chiari forum.

Check into your LTD INS carrier....I do not have Syyringomyelia, but I do have Chairi, Ehlers-Danlos, tethered cord, Hashimoto's, and a few others and my LTD carrier said I was capable of working a sit down job, and I was denied.....

I had to take my LTD when  I did as my STD ran out as did my FMLA....I had no choice....

Do look into it closer...just having a Dr behind you may not be enuff....get more info. BTW- I am in PA, the situation may be different  in your state too.