I am sending prayers ur way for both u and ur DH stress levels and for his health.
Molly is in a lot of pain, she always is post op, as most meds do not help her....there is some good news and I will post that on the prayer thread for her.
((hugs))
Hi friend
Dr sent us home last night after stress test came back "good per se, however did show some valvular issue that we believe has nothing to with your pain". Demanded to speak to cardiologist. One person there was a lil full of herself. Cardiologist said we could stay in hosp til mon and he will do heart cath then or we can come home and call on monday to schedule heart cath. We came home as dr felt he was safe to. I am "numb" headaches n bad back pain today. :( pain woke DH up at 330 am. Pls say some prayers for him. Our stress levels are crazy high.
Hopefully there is great news on Molly. Would love to hear something happy and good to get outta myself n my situation My physical/emotional self wants to pull me down but the stubborn leo in me wants to fight and look toward the light.
Hugs
Thanks for the update....glad he is getting good care, it is not always the case in some hospitals...so I am glad he is in a good one.
Hope u r resting up....
I had a very good day,. fribbling was a little slow today....: (
Thank you. They're keeping him overnight. Tmrw he'll have an echo and stress test. If all is good with that they may just do a heart cath as he has extensive family history with "widowmakers" - young n old. Also doing a complete neurological work up bc hes having slurred speech, really bad dizziness n blurred vision. The care he's getting here is outstanding. Different hospital than we usually go to. Hope your enjoying your friday n "fribbling"
I posted on the prayer thread that they were behind schedule and not in the OR yet, I have not heard nething lately,...I guess I will have to txt her mom again and ask.....
SO they r going to keep him....I pray he is alright.
Same with u, oh I know chairs in waiting rooms r the worst.
Hi and welcome to the Chiari forum.
May I ask, did they rule out TC b4 ur surgery? Many times we have it b4, as I know I did and my Drs debated as to which surgery to do first...but it will cause ur cerebral tonsils to re herniate, and have bladder and bowel issues....lower back pain, leg pains,HA's...the works...really.
The other thing is since u have EDS that plays a role in this too as u run a risk of it re-tethering....
Another question what type of dura patch was used for ur duraplasty?
I also have TC...had the decompression and am holding off on the TC release as long as I can...I also have EDS...and I know it could mean several surgeries....
This summer I went to the ER with severe back pain, only very strong pain meds helped...not sure if it was from my TC, but if I only have a flare once in a while I am ok with that....
U have to have a Dr that knows to look at u for ALL related conditions and see which is causing u the issue....
If u have EDS u may also have instability too...have u been checked for that?
Sorry for all the questions, but these are the questions that once answered help answer ur questions.