UNEDUCATED DOCS? PERFECT INFO TO SET THEM STRAIGHT!

[laratterman]

FABULOUS FIND!!! This is something EVERYONE needs to take to the disbelieving docs or to any new doctor's appt! If they read this and still claim there is nothing wrong with you or claim to understand CM/SM, but haven't a clue... it's definitely time to get a new doc! Specifically one WITHOUT a God complex! BRAVO BIOMED!!!

http://www.biomedcentral.com/1471-2474/10/S1/S1

This is probably THE best piece of info I have read to-date... and I've read a LOT of stuff!  Personally, I think this is priceless as far as arming yourself goes!

Beware medical community - We're ARMED!  (With multi-expert information!)

Blessings!

[dermarfx]

AMEN..........that study, is the best read, and informational piece of literature that applies to this Disorder that we share,God bless the man that wrote it......Russell

[*Stormy*]

True...that's why it's it is so important to get the right dr...some do care enough to learn something new but you have to weed through all the ones that don't first!!

Carolyn

[selmaS]

Lori...it is the same with Chiari and one can only hope that there is a dr out there that will choose to look into those issues that r rare a bit closer...I am sure the funding was not there for chiari 10 yrs ago like it is today and with the Chiari walks and other things being done to raise awareness that this is not as rare as they once believed...more overlooked than nething else.And then we will find more drs to help those of us still searching for a dr......no matter what the condition or how rare....someone has to research it to find  mayb it isn't as rare as they thought?

It deff makes me go hmmmmmm

"selma"

[laratterman]

You know, I had to go to an Endocrinologist for some work-ups and was seeing him specifically for several issues.... one being the possibility of Dercum's Disease.  At my appointment, I found out (even though an endo is one of the top specialists for DD in the world) he doesn't deal with it.  When I asked him why, he gave me an interesting reason.

He said (and this isn't an exact quote as I didn't write it down or record it, so it's from memory - and we all know how that is!  LOL!):  There are so many common ailments that we have to be prepared for, they will be in our offices daily.  These things are well researched - why? - because they are well funded.  The rare conditions don't receive as much funding specifically because "they" can either pour money into research for the conditions who affect millions or "they" can put it into conditions who affect 1 in a thousand or less.  Which do you think "they" will choose?  In our teaching, it is the common conditions, and the not so common, but not rare ones that we are taught and learn about.

I found this interesting... but I also have to ask myself, "Why, when there is information out there and other docs who they could learn from, wouldn't they want to challenge themselves for something that few know much about?"  I guess it's one of those things that make you go, "Hmmm...?"

I'm glad you found the information worthy... I was so excited reading it... knowing it was from experts and it is in black and white so we could use it to arm ourselves!  

Blessings!

Lori

[selmaS]

Thanks for sharing this info...and u r so right, it explains everything and I just wonder Y drs do not get this info in Med school???

"selma"

[*Stormy*]

THANK YOU SO MUCH FOR POSTING THIS!!  It totally described me to a T!! It was so validating to read and cleared up some of the questions I had. I have bookmarked it to come back to..as unfortunatley black print on white is killer for my eyes!! I have to say I love the part about the various vision problems that are found despite having a fairly normal neuro-ophthamic exam..that is totally what happened to me!!

I think it is a must read too for anyone who is fighting to get disability for their condition.

A really, really good read...

Carolyn