Aa
Aa
A
A
A
Close
1268921 tn?1288919056

Vision issues--what do you experience?

I've been having vision problems for the last 3 weeks (with an 'event' tossed in the middle--numbness, confusion, etc).  Just wondering....for those who are officially diagnosed with the CM--what type of visual disturbances do you experience?  Do you have them all the time?  For periods of time?  Intermittantly?  Trying to figure out if the visual piece is 'low-lying cerebellar tonsil' related.  Thanks, Kim
61 Responses
Sort by: Helpful Oldest Newest
1088046 tn?1272285396
wow! that does scare me a bit, especially after my last visit with my optometrist! i'm going to have to make an appointment with here right away, just to be sure. thanks, Carolyn!
Helpful - 0
1179332 tn?1297478990
Two things: I get that with the floaters...when I am in good light they are all over my vision and they all move together kind of like the are all attached by something..I'm not sure that is quite the same?

Second..I learned this in medical terminology...if it is like a veil has come down over your vision...that could mean you retina is detaching!!!! If that is the case, you need to see an optometrist ASAP as the faster you catch it, the better chance of repair!! Not trying to scare you but as soon as I read you post, that is what popped into my mind.

Carolyn
Helpful - 0
1088046 tn?1272285396
Because my memory is pure crap anymore, I wanted to quickly post this, lest I forget how to describe it!
I've been having some vision problems,and the hardest time trying to figure out what is wrong, let alone describe it to anyone. Finally, I think I have it! It looks as if I have a semi transparent black cloth over my eyes. Like, you know if you have a piece of felt and you pull it until it's thin and see-through... I can see everything, but it's like there is a black haze over it all... and some areas are thicker "material" than others.
I really can't find a better way to describe it, I guess. I just know that this isn't how it used to be.

Am I alone in this hazed vision?
Helpful - 0
1287323 tn?1277079985
Thank you for the advice about having a list....my only problem is that with my memory issues, I will probably forget to take the list!!!!! lol Seriously, though, I will been compiling a list of concerns and symptoms and will be sharing with the NS.
I'm glad to hear that you have had some relief with the flashing lights post-op, and I hope all goes well with the eye doc!
-Nicole
Helpful - 0
1179332 tn?1297478990
Yes I had the flashes b4 surgery..it was just annoying the way that any light would be flashing in your eyes..lol..

I noticed right after surgery that it was actually a little worse for awhile which had me worried but I think now that was b/c there is alot of inflammation of your brain post op and I also had an allergic reaction to one of the meds which probably made it worse. The good news is that I haven't noticed it as much lately.....somedays if I have more headaches or am tired I notice it more. I am actually seeing an ophtha this Friday to determine what is causing the lasting vision issues (whether it be perm. damage or just something that needs more time to heal!)

A good idea is to have this all typed up in a list so you can just hand it over!! I may have told you this b4 but I tell everyone so I can't remember who I've told..

Carolyn
Helpful - 0
1287323 tn?1277079985
I did tell my NL yesterday and he made note of it on the info he is going to forward to the NS, but I will make sure to mention it to the NS too. Did you have them before surgery as well, and if so, did the surgery affect it at all? It's not too annoying yet, but it's random and kinda weird! lol
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease