Watch and Document

[EmbraceLife]

I've been told to watch and document since October 2011.  Things are getting worse ... and I have it documented.

I am so frustrated and I am so helpless in dealing with his pain.  His EEG is abnormal with no seizure activity.  He has a multitude of symptoms but nobody feels they are related to the chiari and nobody can tell me what they are caused from.

We're on the search for a chiari specialist and will move wherever we need to in order to find the help for our guy.  I appreciate the feedback I got from my earlier question about relocating.  It's given me a place to start searching for a pediatric chiari specialist!

[selmaS]

  The problem is the Drs training they received in med school. ......it was old out dated info and so they go by that, and they do not listen to the patient, they go by what was in the books, not possibilities....

Once u get to a true Chiari specialist u will see a difference.

[EmbraceLife]

Is there something I am missing with why medical professionals do not want to call experiences symptoms of a chiari?