Wednesday's Weight In~~~~~

[selmaS]

Hi All...lets get started...first who all wants to participate?

U do not need to tell us ur weight or how much u want to lose, but u may want to get the tracker up and running so u can track ur progress.

SO...post ur name and if u want to participate in a diet modification/exercise program for those with limitations.

    and hopefully we can support each other as we shed weight....and feel stronger with out pain : )

[MicheleTxRN]

I'll join you!

[selmaS]

  I have an older thread and I can post some of the exercises we did last yr....I post the weekly threads during the school yr as that seems to be when we have more activity.

R u more concerned with diet or exercise?

[selmaS]

  Hi all I made the yellow cake and pumpkin muffins....soooo very yummy only 2 left tho : (

[selmaS]

  Ok waiting to hear what this group is looking for diet and exercise wise so I can add.....

[jiggle93]

Hi Selma!  I would like to share Chris Adams F.U.E.L website http://www.thefuelfitness.com/.
This is a man that is a fitness trainer and also raises monies and awareness for chiari!  He is true cheerleader of chiarians and is inspired by what we go thru daily to push him to do what he does better!  He has a facebook page as well.  
Being fed up with everyting I cant do  I have been walking on my treadmill daily, now only up to 45 min. and 2 miles.  I'm not sure it is doing anything physically yet, but I love how encouraging Chris has been.
I am by no means encouraging anyone to start a work-out routine, but was just so excited that there is a trainer out there that understands chiari. Thought maybe we all could check out his site and encourage him in supporting us!

[czpdx]

Thanks for posting about FUEL! From his page I linked to the Chiari Warriors' facebook page -- SO inspiring!

[selmaS]

  This is wonderful that he supports Chiari and Chiari research.....what I am concerned about is his type of exercise he offers as he states he believes in resistance training, for those of us with EDS this is not a good way to go...and I appreciate ur sharing this info......

I do feel we can use the Dr on the site here to offer exercises for us, and we can also develop a diet for our individual situations....

  Don't get  me wrong there r some of us that may be able to participate in some of what he does, and some that would not ....so I just want to caution neone looking at the site to consider  if u r newly dx'd wait until u have ruled out all related issues and if u r recently decompressed, wait until u r healed.

JMHO

[jiggle93]

I agree Selma! And I do believe he customizes the work outs for each person, as he also trains many non-chiarians.  By no means did I  mean that I thought everyone should jump on board and start a program.  I honestly dont know how Kalyn does what she does, but simply thought how great that he is out there educating others.  

[selmaS]

  I deff agree with u. I just wanted to make sure that others also know that there r other issues we can have in addition to Chiari and I do not know if this person knows about all of them,

Although I am impressed in his generosity and willingness to help.

  
  My immediate plan is to try and find what people need in exercise and diet so we can get a new thread started.....

I have a Dr that helps with the exercises I post keeping in mind all limitations, including those recently post op , and those with EDS...etc...

  We all r at diff levels and I am just trying to find what the need is at this point for the group we have now.

Thanks again for sharing that info as I find it so inspiring that someone is so willing to help : )

[selmaS]

  Ok...so what r u all looking for...or should I let this drop?

[selmaS]

   Hello?

[Viva001]

Personally, I would prefer book/movie recommendations.  I always keep a list, then frequently misplace it, lol.

Or, crafts?  I recently looked at a book on holiday decorations, & some were easy and/or unique.  Not the 3 story ginger bread house a la Martha Stewart!

[jiggle93]

well, since I havent been on the treadmill once since the kids hit fall break...and I'm on my way to drink coffee and eat cupcakes...I think I'm up for anything new!  I loved Vivas recmd. for Rosemary and Thyme...I got about 4 episodes in before the kids took over!   Books would be great, tho I never have the money to buy them, and our small town library is awful!  I like movies, but same thing again. And I love to pretend to be Martha Stewart, (my hubby HATES her) but then again, it can get pricey too! HMMMMM.....not sure!  

[selmaS]

  Well the movies and such would be a thing for Fridays thread.....I was hoping we could address how we should exercise and watch our weight .....

  BTW- I also can not stand MS I will not even spell her name......

[Viva001]

I will never write her name again, although I did like her idea for serving peas within a circle of a slice of baked squash.

Sorry, I cant be with you on the exercise (yet), & I don't think you want to be with me on the weight loss; not this way.
I wonder if w/Chiari, our metabolism out out of our control.

My DD went on the S. Beach diet, lost 20+ lb & never put it back on.  Of course she's young & healthy.
A friend's father, a dr, lost 70 lb--& put most of it back on.

[selmaS]

  Well with the thyroid issue it is diff to lose weight for many of us, then add EDS and we have restrictions as to what we can do...no resistance with those elastic bands and that is what PT wants us to use....and I am searching for what I can do....

Not that I enjoy exercise, but know I have to move it or lose it.....

[Viva001]

I was gaining a lot of weight before the Chiari crash last yr.  it was weird, because nothing had changed (activity level or food quantity), & I could not lose it for anything.  I thinkmI gained weight just Looking at carbs.  I had to buy new clothes, just to wear around the house.  It's very frustrating to feel heavy, but I will never be judgmental about it again.

[jiggle93]

Ive gained 20 pounds in 14 months...thanks to chiari and thyroid(tho, I'm not under dr care for the thyroid yet.). So far, the only thing I can do is walking on the treadmill. I have scaled back what I eat and how much I eat, but nothing seems to make a difference.  I wish I had something to contribute on the Wed. thread.  Years ago, because of IBS, I went to a no white sugars, flours. Lots of yogurt, almonds, turkey and salmon. I lost 30 pounds. But I gained some back, and now I am heavier than I was when I started. :/

[selmaS]

  My weight fluxuated too with no change to diet or activity so I know how the thyroid can affect our weight regardless of what we eat.

U mentioned IBS...do u have that regulated? I know weight gain for me also goes hand in hand with a IBS flare....

[Viva001]

How much do you think is due to dysautonomia?

[jiggle93]

Selma, I'm not sure it is IBS with the more I learn.  Started around 2000.  I would lose bowel control randomly. I never really got constipated, just always had diarrhea.  Dr. told me it was IBS and to change my diet. I ate yogurt by the truck loads as I was so embarrassed at being in my 20s, and messing my pants while out of the house.  About 5 years ago I started having problems with my bladder, dr gave me a little blue pill to help me not pee myself.   Now I eat and within seconds, I'm in the bathroom with diarrhea...not sure if its thyroid related or not?

[selmaS]

  So u had a loss of control...an incontinence type issue....I was always told IBS when I either just did not go and did not feel a needed, or I was running I never felt constipated either...

And a syrinx and tethered cord was ruled out?

[selmaS]

  I really am not sure....hmmmm something to do some research on....

[jiggle93]

nothing has been ruled out. I moved with in weeks of finding out about cm. I finally have a NL name, but have not made the appt. yet.  I was also told I had gerd, and told to take prilosec daily....which I dont. I just try to avoid foods I know trigger it, constantly adjusting that....
I wouldnt be surprised if they find syrinx or tethered cord at this point. The research seems convincing enough for the symptoms I have.  EDS seems to bring it full circle for me to kind of that "a-ha" moment when everything makes sense. Had someone with EDS do their assessment of me and said to me, have you been checked...adding that to my list of to do.