Hi,,,,this is an older thread and the member u r addressing is no longer an active member, u can try to PM (private message) her as it will generate an email informing her someone was trying to make contact.
I just wanted to say I think your questions are excellent! I find myself asking the same ones every day.... I have reactions to meds too and agree that it's not the answer. I can tell you that PT helped a bit and I am considering a nerve block. Motrin 800 takes the edge off SOMETIMES along with laying down. Ultimately however, I know I need the surgery to correct the problem. I'm working on getting there mentally and I know you are too. Funny how we know what we need deep down. Good luck to you, I hope you feel better soon. I hope and pray we ALL feel much better soon :-) Lisa
Hi and welcome to the Chiari forum.
This is an older thread so Jenny may not be as active as when this was posted so u may want to send her a PM (private message) this will generate a e-mail that someone is trying to make contact.
As for the meds, I was on TOPAMAX and it does help reduce pressure and help with HA's....not knowing what ur issues are or what type of pressure u have ....u may want to create a new thread and give some details and mayb one of our members can offer some insight for u,.
Great reply Jen, have you taken any of these yourself & seen improvement with chiari pressure?
Hi and welcome to the Chiari forum.
The member u r replying to may no longer be an active member on this forum, since this is an older thread u may want to try and contact them via a PM(private message) which will generate a e-mail that someone is trying to make contact or post a new thread so current members will be more likely to respond.
There are many here waiting on surgery confirmation and those of us that have had surgery.....u r not alone and we will help u as best we can.
Hi was just Dx w/ Chiari and syringomylia, mine is also 8 mm long but I have mild symtoms. Would love to talk w/ you about how u r doing since your last post in 2010, as I am also a mom of 3 busy kids and this is affecting our entire family. Not sure what to do from here.
Thank you, Susan 43 old mom of 3, married 17 years