Why do I have Scalp, Neck & Collarbone 'Painful - Numbness' suddenly 7 yr Post-Op?

[Fmac93]

I haven't had any glaring issues since my spinal decompression in Jan 2011, I am, all things considered, lucky in my Chiari diagnosis.
I have had such minimal symptoms since my decompression, was totally cleared about 3 years ago. I had an MIR around 8 months ago and was told I was the same no change.

Monday April 23rd 2018 @ approx. 730am while getting ready for work I noticed a slight numbness in my head, thought nothing of it out of the normal. made sure I took my gabapentin as this is common if I forget.

Driving to work the pain in my left side back of head and neck was throbbing in pain making me wince. still thought this was possibly normal and would subside on its own. you know, regular Chiari pains.

30 mins later, as people began shuffling into the office, I couldn't take it anymore, and had a co-worker take me to the emergency room in tears.
I saw the Dr at around 9am and he did a neurological assessment on me, and concluded I have numbness and pain (that feels like the Chiari numbness not normal people numbness) localised to the left scalp/neck and collar bone area. He said this is because it is my nervous system (gee thanks). He suggested Advil, I asked for naproxen, He gave me naproxen around 930am, fast-forward 1030am and naproxen should have kicked in by now, nothing, no change whatsoever. In fact, I mentioned it has spread a bit and going through my shoulder now. He was contacting my neurosurgeons office to ask to get an MRI, which they said they will call to set up but they don’t believe it is urgent. its Thursday now and still not call, I understand it takes time so I will wait.

However, he said "they are not concerned with the pain"
That's really nice and all, however I am very concerned with the pain as I work a 45hr/week job and am quite new so i rather not use my sick time.
Naproxen does not work,
gabapentin increase makes work impossible as I can’t think very straight at all.
I have massage therapy tomorrow evening, i am however super afraid it could exacerbate the pain as it is the nervous system and not he muscular system that is the issue here.

Any advise on why this could be happening to me so out of the blue?
Has anyone else experienced collar bone numbness?
Anyone have left side of the head 'numb' (a painful numb)
I also don't want to jump to the worst conclusion as my last MRI was only 8 months ago and was clean.  

[selmaS]

Hi and welcome to the Chiari forum.

May I ask, did they rule out ALL related conditions for you prior to your surgery? It is common for those with Chiari to have additional issues/conditions and many of them have similar symptoms to Chiari and could be the root of your current pain.

I also have Ehlers-Danlos and get the kind of pain you are talking about, I too went to the ER and was given Valium and Dilaudet (sp?).....and those two work when it gets that badly for me....I had surgery in '09 and have had to use strong meds a few times over the years......I also found inbetween the really bads ones that CBD daily helps.....not sure if you are in a state or area that allows the sale of it, but it is helping me alot.