Would love to know your symptoms

[cyberpyxi]

One of the hardest things (besides everything) about having a rare brain malformation is having these strange symptoms and feeling like you're the only one. I would really, REALLY love to hear a list of everyone's symptoms related to Chiari's. Every time I research and read symptom lists, I always find something that I didn't know was a common thread, but makes me feel less alone in this crazy thing. For example, the one that really sticks out here of late is that in one study, most people with ACM had a tendency to walk on their tip-toes when they were younger... that floored me! I was nick-named tippy when I was a kid for that very reason! And then today, I read the thread regarding "weird symptoms", and found even more things that I didn't even associate with Chiari's, but turns out, some of you have as well!
Anyways, I know I have a list a mile long of symptoms that are either Chiari's for sure, or those things that I assume are related. What are yours?

[cyberpyxi]

do you also have tethered cord? Un-empty-able bladder is a common complaint of those with TC, as is bowel problems.

[*Stormy*]

No I haven't heard of that but sounds like something to try!! Thanks!

[irishred795]

Have you tried coating tongue with Maalox or Mylanta? My son had horrible sores in his mouth and the doctor said it would help with the pain.

[irishred795]

Ditto on the toe walking, scalp itching, depth perception, trouble concentratin (losing my train of thought mid-sentence, trouble finding words, dizziness, headache, neck pain, frequent urination because my bladder NEVER feels empty, falling over when I stand for longer than a few minutes, constant throat drainage, ear ringing and "flapping" sound and pressure, fatigue, dropping things, just clumsy altogether, blue and red spots in my vision, complete vision loss when my head is in certain positions for too long (again more than a few minutes), bowel issues, somedays along with the headache my eyes hurt especailly when they move, and nausea. As I lokk back I can see symptoms began when I was very young so I got older I just assumed it was normal.

[greeneyes247724]

Ahha......now I know why my scalp is itching!!!!!  FINALLY!!!  Thank you!!!  =)  And the ankle joint issues....answered!!  

And thanks for posting all your symptoms......I think it so interesting when I find something that is wrong with me that is or could be relate to chiari!!

[*Stormy*]

NO kidding...something's got to give...I'm glad that you are finding a little bit of comfort in dealing with it anyway... I am currently dousing my burning tongue with water 24/7 trying to try and deal with my newest problem...