anyone else with bilateral hearing loss?

[SG2]

I have 92 decibel loss left side, but yesterday & today my right ear also affected. On way to ent in few min....

I feel almost completely deaf now... Wtf is next?

[SG2]

AM, I just looked up SS and I don't know if they've ran any blood work for it, but I will ask.  I'm still in the hospital... :(  

Did the docs say if your hearing will return after PFD surgery?  

[selmaS]

  Hi....glad ur Dr is admitting u to keep a close eye on what is going on.....do keep us posted.

actressmouse has a point about it possibly being Stickler....ask ur Dr if this was considered...just a thought, but a good one...thanks actressmouse : )

[actressmouse]

I have a significant hearing loss (more so on the left than right) plus tinnitus. I have a hearing aide that helps (sometimes...it's not like a "real" ear).  You mentioned eye problems as well....was it a retinal detachment?  Do you also have joint pain and hypermobility?  My docs think I have Stickler's Syndrome which involves sensorineural hearing loss, vision changes/loss, and loose joints with pain.   Not sure if you've talked about this before. Hope you are getting the care you need right now. {{hugs}}

[SG2]

HI Selma

Well I got tested, my right ear is down 40 decibels.  I'm being admitted for IV steroids and more scans (head).  Waiting for admission orders now...

Left ear still holding steady at a 92 db loss. ENT doesn't want to follow benign protocol (oral steroids or injected steroids) cuz that's what we did with my left ear and it didn't help at all.  :(  So he's being very aggressive with the admission.  If I lost this left ear, I'm done - all deaf, all the time.  I think I've mentioned I'm also blind in my left eye...

I'm so very depressed but trying hard no to be. It could be worse..I know.  

[selmaS]

  Hi...So sorry, but yes I know hearing issues is a possibility with Chiari.....
Good luck at the Drs and do post an update of what u find out.