Aa
appt with pcp today
I am seeing my pcp. Actually one of the nurse practitioners. I havent seen my reg dr since i was diagnosed. They dont know what chiari is lol. I want them to run some blood work to check foe eds and thyroid and the vit deffeciencies. How do i go about asking for all this?
I am glad that your going to see your PH. Hope you get some answer's. I have taken Selma's suggest and started my Vit's again yesterday. Thanks Selma. Went out and got Magnesium yesterday. So I'll see if that help's with the sleep issue. Good luck at the Dr. Let us know how you are doing.
"Linda"
"Linda"
COMMUNITY LEADER
There is NO blood work for EDS it is a physical NL exam....then once u r determined to have the markers u r sent to a geneticist for a skin biopsy.
A rheumatoid Dr is one that treats EDS one u have the DX.
Foe the thyroid issue most with chiari seem to be blessed with u want them to check ur TSH, free T3 and free T4 and TPO antibodies, this is to check for Hashimoto's thyroditis it is an auto immune condition.
All vitamin and mineral levels as Ray mentioned should be checked as well....vit D, B12, magnesium and potassium.
Take a note with all ur concerns written on it, tell ur PCP that these are issues for those with Chiari...even tho he/she may not know what chiari is, u can educate them.
"selma"
A routine non specific screen should cover full blood count, liver function, kidney function, cholesterol, glucose(diabetes), thyroid function.
You need to fast (12 hours) before having some of these bloods tested.
Electrolyte Panel can show abnormal sodium and potassium levels.
People with bladder problems related to CM who experience severe fluid loss may show an increase in potassium, sodium, and chloride. Some forms of muscle and nerve problems may also have one or more abnormal electrolytes.
You need to fast (12 hours) before having some of these bloods tested.
Electrolyte Panel can show abnormal sodium and potassium levels.
People with bladder problems related to CM who experience severe fluid loss may show an increase in potassium, sodium, and chloride. Some forms of muscle and nerve problems may also have one or more abnormal electrolytes.
Does your pcp know what chiari is? I also starr pt tomorow and im scared that they wont know what it is either. Im gettin tired of explaining my illness to drs lol
I just make a list and tell mine what I would like. She is always open to my ideas and says you have to be your own advocate. I hope yours is the same today:) just ask
Have an Answer?
You are reading content posted in the Chiari Malformation Community
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
