I do have back pain, but I do have tethered cord and EDS and they as well as Chiari can have a part in it....but since the related conditions are present for me, I attribute my back pain to them and not Chiari.
Do u know what area or malformation ur Dr was talking about, as I too was told I would need more surgery and I have put it off....
My surgery was not until I was 49....we are born with this, so...if u had perm damage ur Dr should have told u post op what they found during surgery.
Thanks for the response, this back pain is definitely from the Chiari. It is the same pain I had before the operation. The pain left for about six months. For the most it is the only symptom I have left. I responded quite well to the surgery. My Dr. did warn me that I might need another surgery to correct another area that is malformed and that symptoms may reappear. I would rather not have another surgery so learning new coping skills or available treatments are key. I ask because a lot post are about headaches, balance, overall pain but not too much on back pain. I have it hard to believe they haven't figured out a way to stimulate the spinal fluid better. I didn't have the surgery until I was 37 so maybe the damage has been done.
Hi and welcome back !!
So sorry u r having the back pain....May I ask, did they rule out other related conditions b4 ur surgery or since?
Surgery is not a cure...only a means to slow progression and restore CSF flow.
Have ur Dr do testing for related conditions and non related conditions....as they can be the issue and not ur Chiari.