chiari walk uk

[kt1974]

I would people with chiari to unite on OCT 03 2010. To help raise awareness of Chiari malformation, meet other sufferes and suport each other.

Advertise where you and your friends and family will be walking invite others to join you. Make a difference, if you cant walk can you go along to a local walk and show your support, can you help advertise a walk near you. If America can do so can we. Together we can be stronger, GPs will know the name of Chiari, benefits agencies, care agencies and your friends will all know what we have, what Chiari malformation is and how they can help support us.

Join Chiari walk uk, details on facebook and chiari.co.uk forums page.

Anyone else fed up explaining what Chiari is????????????

[taylapj]

Yeah defo!!! can't wait for it, well i'm gonna get t- shirts made up, My mums gonna wear one to.  Im gonna see if i can get a purple stick to, i'm too embarrassed to bring my crotches down lol

Bumpy bump is just me pushing the post up to get attention ;-)

[kt1974]

Be great to meet you Tayla, the walk bit is going to be very casual. Important part is for everyone to meet up and let the press know we exist. Hope your all be waving or wearing something with Chiari on it. Keep well
kt
? whats the bumpy bit?

[taylapj]

Bumpy bump ;-)

x
x
x
x

[taylapj]

My Find raising page, any monies given goes straight to the charity with gift aid.. . x

http://www.justgiving.com/Tayla-j

[taylapj]

Yay! can't wait for this, don't know how much i'll be able to walk the whole way but am excited to meet others, think my mum, sister and brother are going to come ;-)