chiari???

[irislita]

I have a strange thing...i noticed walking around that my legs after about half an hour get week and later till the point i feel not able to move them anymore???its scarry.i am wondering if this is spinal cord compression as it comes from neck movement...i am scared to be in a wheelchair one day:((

[selmaS]

  It just takes time until u build strength and stamina back up and as the nerves regenerate or wake up or what ever they r doing it will continue to affect u....and it can take the nerves up to 2 yrs to heal completely.....

[irislita]

This is a post op issue for me too.strange no???!!!

[Sexybare]

I too have this issue, especially after walkin or standing for half hour or more. They get all shaky and weak and do not wanna move. Dont know why. I noticed this more months after surgery?!

[Rahe28]

HI sweetie.....I understand that frustration....most days...I don't get a chance to sit very much...and by 8pm when I sit down./...if I try to stand back up...I have to have assistance. I also have disc issues and sciatic nerve compression...so it could be chiari also. Just wanted to let you know I deal with it also....and you aren't alone. SO glad that you sister sees improvement...Yeah....I am sure that it is hard to see improvement when you still feel bad ((hugs))

[irislita]

Thanks selma really...its calming me down.i really have the same.doing too much is definetly triggering those situations.but my sister told me she sees so much improvement since surgery ;))

[selmaS]

  There r a few things this could be, a disk that is bulging, TC, EDS, and yes, it could be chiari.....

It can also happen when u may be over doing things...I recall when I was working pre op and at the end of the day I could barely move my legs to walk to my car.  I do have EDS and TC and a bulging disk in addition to my chiari, and I still get this post op if I am on my legs too much, seems no matter how I  try to build up my stamina, my legs do not want to go past a certain point, and then they swell like water balloons.....

I will also add I have used a cane since 2000, long b4 I was dx'd. and I can walk better and further now with out it, at 3 yrs post op...so I see improvements....but it can take time.