Chiari Malformation Community
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decompression or no decompression???

I have type 2 chairi malformation, I also have other things attached to this such as spina bifida.  I have always known I have this condition, and never really had any symptoms as such. however over time I have noticed the symptoms have progressed and gradually got worse. however my surgeon has always said that I don't have to have the operation, however I have read so many peoples stories and when they get diagnosed they have the operation without a second thought. I am so confused about what I should do as my symptoms are getting worse by the day, I have recently began to get leg pains and cramp up to 5 times a day.
2 Responses
620923 tn?1452915648

  Hi and welcome to the Chiari forum,

I am not aware of those that do not give this surgery a 2nd thought, as everyone on here give it a 3rd, 4th and 5th thought and sometimes more.....

This is a major surgery and u have to consider how ur Chiari is affecting u not only with symptoms but ur overall health.

Do u have a CSF obstruction, what symptoms do u have, and it is progressing.

Then what other related conditions do u have as that is how u determine if surgery is right for u, and having the right Dr is key.
5640779 tn?1375813366
I don't understand the rationale of any Dr who would suggest a symptomatic type 2 Chiari with SB should not be treated. Have you ever considered getting another opinion? I don't see how your condition could do anything but decline without the treatment. Studies do show the likelihood of improvement with the appropriate procedure. Take a look at what some of the experts have to say about it. The conservative approach is usually indicated in border line asymptomatic cases. This is certainly not the case here. Good luck to you :-) Lisa
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