heart problems with chiari

[neava]

hi everyone,

ive been having heart problems recently, the beat is slow then speeds up, my blood pressure ends up being 204/110, went to hospital, was sent home,
now awaiting a 24hr heart moniter, i get so lightheaded, and weak, heavy, if i take a step of stand, or even roll over in bed, it becomes hard to breath,
I have had this alot, but had never had a BP, or heart listened to while it happened, i dont normally go to doc, but i felt so bad, i decided i should go, which i found interesting as it maked me wonder if this happens every time,

my question is....... Do you get heart and Blood pressure problems with chiari and if there is anything that can help this effect, of relieve it????????
at the moment i seem to have problems one after another. lol

[selmaS]

One other issue I forgot to mention is GERD and acid reflux which can cause many of the breathing issues that Kim u mention.....so do see a GI dr if hte symptoms continue, but the heart is ruled out as  a reason.

"selma"

[gmaldonado]

Hi, I used to post here as GAREVALO. Selma I remember you i dont know if you remember me. I lost my password and id and what not. Anyway. I too have experienced all the symptoms you all mentioned. I was reading your preavious posts (neava) and its heartbreaking and i know how you feel because my docs look at me like i'm insane and i'm making it all up. my heart seems to beat alot more than it should..and i too have had ekg's and they're all normal. 2 wknds ago i was driving and had a palpitation and then i couldnt breath..i said to myself you're ok its an anxiety attack..but as i kept driving my head began to ache and my heart was racing faster than 170..had to be faster. I dont know how i pulled over but i got out of the car (my children had no idea what was going on) when ems gothere my vitals were normal but my heart rate was jumping from 80 to 135 w/o reason. I honestly feel there must be some relation to chiari. The paramedic told me that it might just be that as your brain stem controls your whole body. It scares me. I havent had my surgery yet..because i was too afraid but after all the symptoms i've been having i am truly considering it. Oh and neava, my primary doc put me on anxiety medication too. he said my heart racing was probably just that.

[selmaS]

Hi and welcome back !!

Do contact MH and let them know u opened a second account and y....this way they can delete the other account.....but I did check and could not find it...how long since u were on?

When I was in High School I got the palps really bad for a while, then they went away for a while....but over the yrs they came and went a few times....

Have u been to see a chiari specialist?

I am glad u r back!! So sorry u r still dealing with some of these issues....

"selma"

[gmaldonado]

Thanks! I haven't been to a chiari specialist. I am in desperate need for one though. I last saw my neurosurgeon when i had found out i was pregnant (my son is now 4mths old) I don't know why but during my pregnancy my symptoms were not as bad. Where did you have your surgery? I have heard great things of dr. Oro in CO but I'm afraid i dont have the money to travel out of state. I guess i need to look into organizations that can help me. I am so desperate at this point! My surgeon told me it was up to me, how much i could take before i decided to get the surgery. He said he recommended it but he's not a specialist and I want a second opinion.

[selmaS]

I went to TCI in NY....

The health pages does have links to orgs that will fly u free of charge...and we do have our dr list here for u to research and see which ones work with ur insurance and how u may be able to arrange to get there.

I believe there is a dr in TX...not sure if they were a peds dr or not....but do research first....I am sure u will find the right dr for u.

A second opinion is good and should be from a chiari specialist....have u had the CINE MRI?Do u know if u have a CSF blockage, overcrowding, tethered cord, a syrinx? EDS?
http://www.medhelp.org/health_pages/list?cid=186
There r many pages with in the Health Pages with helpful info for chiarians.

Again welcome back  : )
"selma"

[neava]

thanks for comments, this is my third time typing this out, my arms are wobbly and a keep pressing wrong buttons, lol

But thank you,

im back to see surgeon next month, but im unsure i will want to have surgery as, im not sure it will relieve anything, it might come back, or cause more problems.
plus he might not want to operate, he decided not too lasttime before i had my cyst removed, or that could of been the nuero specialist, he hasnt been straight up with me.

OMG i just feel bad all over, i have trouble walking to the other end of my house and its only a 120 m2 size hme, my heart feels like its going to jump out of chest,
i can normally dance for hrs as i teach latin and ballroom dancing, this is not right,

SELMA..... do you remember telling me to get checked for a hiata herina???? well i had a camera down the throat a few weeks ago and it was clear, but i had a scan and it showed gallstones, so that explains my chest pain, so thanks for that i would have just left it, until an ambulance had to get me. lol

im waiting for a lapscopy, in the stomach to check women bits as im having more problems. I must say im tired and fed up, this is so frastrasting,
could be MS, it could be MOTONUERON DISEASE, CHIARI, HEART, does it ever stop,

sorry guys, im so tired with it all and tones of tests which are negative, my doc did say ellimate what it isnt,and have some amo if the specialists to re check brain,