its been forever ---

[burdzmom]

so im still here but not without issues of coarse.
the jeffereson heqadache center was my latest adventure and i found it to be quite satifying.  dr marmura was very informative and is aggressive in treatment.  talked aout my pituitary gland being smushed which is a sign of high spinal pressure. discussed being admitted for intensive IV treatment for 5-7 days. them a pressure check thru an LP to see about a shunt to alleviate some of the issue.  no idea how this next visit on the 3rd will go.
i have been battleing anxiety and panic lately.  xanax and lexipro are the latest, and im praying they work. i feel like i want to jump out of my skin,  its tremendously aggrivating and emotional.  i am praying eveyday that i get a little relief.  
its been overwhelming at times. so sad for me.   any advice of the anxiousness would be welcomed.  
im hoping that the headache pressure subsides with time but dont know if thats going to happen,

hope all is well with everyone,

jilian

[selmaS]

Hi...Welcome back-sorry u r having so many issues, but the anxiety and emotional issues can be traced back to a compressed brain stem and ur pituitary glad as well......it  is not uncommon for chiarians to feel like this at all.

LP's are not recommend as the technician may not be suited to do it just right for us, if they draw the fluids too quickly they can pull the tonsils further onto the brain stem.

As long as u have a well seasoned  tech, and they are aware of ur chiari and it is deemed medically necessary then u can have a LP....but, if we can avoid them we should...as well all know it is not always possible to get the best just going a dx let alone a test such as this.


Please keep us posted how this treatment works for u, can u remind us all ....did u have PFD surgery, or is this in lieu of surgery?

  "selma"

[jenshead]

Sorry to hear you're having such issues.  I wish I had some advice for the anxiety but I don't...hope the medicine helps!

I have a question though - I thought people with Chiari are not supposed to get LPs.  Have you (or anyone else) heard different??  I haven't found a doctor experienced in Chiari, but even the ones I do go to say no LPs because it could make the herniation worse.  I realize it might be the lesser of two evils in your case, but I'm just curious.