joint and muscle stiffness

[Sheri817]

Hope everyone has had a wonderful weekend! Just wondering if anyone else has had this...after sitting on a hard surface, such as a restaraunt chair, or in the floor for more than say 15 or 20 min...is it hard for you to get up? I mean, literally is it hard for you to stand up? First of all, I should know better, lol, but after sitting in the floor grooming my dog, sitting indian style, it takes me a good 5 min to get into a standing position because my back is so stiff and in spasms and then another 5 min to make my legs work..like they will not move because the joints at my hips and pelvis are stuck in that position. I have to literally take my hands and move them to take a step. After I am standing and make them take a few steps they are ok but my back continues to hurt for hours afterwards. I do have deteriating discs in my lower back and some small heriated discs but just wondering if it is that or the chiari..seems like we all have such weird things happen to us and thought I would throw this one out to see if anyone else had the same problems..my husband and kids always call me "grandma" when this happens..lol  I am only 43 and im not a "grandma".  So hard to feel so much older than I actually am!

[selmaS]

  Good Luck !!

  : )

[Sheri817]

Thanks, I will do that and let you know this evening what she says. Hope you have a wonderful day!

[selmaS]

  Ask both!! Not all PCP's know about it, so u never know, ur may...the NS should check u for it...mine did, that is where I got my dx....

[Sheri817]

Just a question about your earlier comment about my joint pain and stiffness...I am going to the endo today about my thyroid goiters..should I ask her about the EDS, my PCP, or my NS??

[Sheri817]

Not happy that you have the same problem because i know how painful it is, but glad to know that I am not alone in this. I too have the det discs so it may be that. My children are 18, 12, and 10 so, I no longer have to sit in the floor to play with them. Though I rem having the same thing happen back then. You know what? Even though it was painful, I would not have given that up for anythg in the world. That was bonding time and I would not have the wonderful relationship with them today if it weren't for all those little moments. Kinda like childbirth, it was terrible at the time but totally worth it. I don't blame you at all for doing it, even though you know you will pay for it later...I would just suggest that you take something for pain before you do it, if possible. Have you had decompression surgery yet?

[Rahe28]

YES... I do have that problem, and I am a 28 yr old female. When I get on the floor to play with my kids(which yes I know as well I should not do) I have the same problem. It is like my legs forget how to work, and then I feel those spasms that are like a limb moving all by itself(and not little movements either). Or if I sit in any chair to long, when I get up my legs feel very jerky like I have steel rods in them. Sometimes I even feel as though I could use a cane to stabalize myself, once they do start to work. I do have some deterierating disks and nerve damage around the sciatic nerve to though. And some damage to the ventral thecal sac too. So, not sure if its the Chiari, the bad back, or a combonation of both.

[Sheri817]

Lmbo! Why can't they just tell us ahead of time, "Im not that familiar with that condition, but Im willing to do some research!"****Oh, wait, that's because they are NOT willing to do the research!  Where are all the Dr's that actually care about their patients and not just filling their wallets??  I remember when I was a child, we had an old dr and if we had symptoms he wasn't familiar with he would tell his nurse to go get the book and he would look thru this HUGE med book until he found what he thought it was. Sometimes we sat there for 30 min while he was looking and talking it over with his nurse..he was soo funny. Not sure if he was always right but at least he tried!

[Rylanesmom]

I think the problem with EDS testing is so many don't have a clue.  My ns diagnosed me and even when I found a rheum that said he treated it I did not feel he was educated regarding EDS.  I asked if he had seen many with it and he said no it's rare ... Um that is why I asked before coming!

[Sheri817]

Thanks  for the input...I have read on here about EDS but never associated it with myself because I thought it was loose joints...hmmm..I will have to talk to NS about this when I go in Feb 8th. I actually have been dealing with this for several years at one point about 2 yrs ago I woke up one morning and could not walk on my rt leg because the pain was so severe when I put any weight on it. Of course that night was my daughters dance performance at schl. so I went to dr and he said it was bursitis in my hip..gave me a shot and it helped very little but was able to go to the school that night with my grandma's cane (humitliating). But, by the time we left my husband practically had to carry me to the car and I had to lay in the back seat because I could not bend at the hip. Lots of steroids and pain killer later it got better. Thank God it hasn't been that bad again! But, I still feel it coming on if I sit too long esp on hard surfaces. I guess like Selma said, listen to your body! I certainly do that now! What's that saying? " If it hurts, DON'T do it!!" lol  I will be sure to bring it up to doc but who knows if he will listen, they usually say " Oh that doesn't have anything to do with the chiari" and send you to another specialist....guess we will see..thanks again!

[Sexybare]

I am 32 and have this problem from just sittin in chair or car toi long. Just started within the past few weeks. All my joints hurt. Want to get tested for eds but nobody will do it yet. I will talk to my nl in march?!

[selmaS]

  Yes, it is a common issue, and many that have this also have Ehlers-Danlos...so u may want to get this checked as it is a related condition that we all should rule out neway, but even more when u have issues like this.

  I think chiari ages us long b4 we r meant to.....I have walked with a cane for over 11 yrs....I was in my 40's....so, I know what u mean about feeling like a grandma....

  Hang in there and do be sure to add this to ur list for ur  Drs to check.

       "selma"

[Rylanesmom]

I do have these problems too and I am only 37.  Some mornings I feel like that when I get out of bed .... Crazy .... I have multiple issues too so I am unsure what is causing what