medication

[keshia3017]

Is there any medication to help chiari?  Doctor gave me nurotin, doesn't seem to help

[keshia3017]

Thanks.....the Er doctor that diagnosed me with chiari perscribed Norco wich doesn't help.

[kwalker0004]

I would hold off on the imitrex for now. So your body doesn't get use to right away and you would have to keep upping the dose. Something we don't actually want as in the future if and when you may need surgery, you will want something that will help you recover. And if your body has adjusted to tthe medicine it won't help you. Imitrex I believe is taken as a last measure if nothing else helps. So try topamax first and even though it took me a long time for my body to over come the side effects it actually helps. And with the support of thus ccommunity I stuck with it because I was frustrated with it all and rready to throw out the medication.

[keshia3017]

Thanks im going to mention these to my dr

[kwalker0004]

Hello I have found out though it took my body a long time to adjust to it but topamax has worked for me. As well as imetrex though I am only take them on the extremely bad days. So we will see how long it will last. As our bodies don't take very long to get use to a certain dosage.

[selmaS]

  Did you  have  leads to monitor your BP  as  well?....Some reg MRI's are  also done with  contrast...it  is the  BP and  the  fact  it is a video of flow   and  not  a still pic  as  in  reg MRI's....this is to see  changes  with your  BP...as it  can   affect   flow.....

[keshia3017]

Oh ok yea they did use contrast on the second part

[selmaS]

   A  CINE MRI  is  a CSF  flow study.....they   do  it in  2 parts...they  inject  a contrast dye  and  place leads   for the  2nd part of  this  testing....

Not  saying it  has  happened in your  family,but many times   Chiari is misDX'd as  MS.....studies  have shown, there  are more people with Chiari  then MS....this happens bcuz the  symptoms  are  similar  as  you  mentioned   and  there  are  many  misinformed  Drs  on  Chiari...

[keshia3017]

No I haven't found a specialist yet. What is a cine mri? I think they just did it of my head. MS also runs in my family and the symptoms are similar

[selmaS]

  Not  really....some may help  at  first but,wear off  in  a  short  time frame...
Have you  had a CINE  MRI?  Ruled out  related conditions  and  found  a true Chiari  specialist?