Hi and welcome to the Chiari forum.
Many of us have this same issue...we may not notice our symptoms as they can be attributed to other things until something like a MVA triggers them to worsen...and then unfortunately Drs r not educated enuff to help.
Most of us find we do have to travel to get to a true chiari specialist.
I am going to include a link of a list of drs names ...it was compiled by the members of their own Drs.....u do have to research the names...the list is not a referral.
http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186
U also may want ur parents to join this forum as well...to help them understand what u r going thru and help them find the right dr for u.
"selma"