opinions needed about Dr. Michael J Rosner

[10Ebtrfly]

I'm a patient who's been on a 6 yr journey of trying to find out what's wrong with me.  So many drs have given their meds, and their opinion ( some of which have laughed at me when tests have come back "normal" even though I'm sitting there clearly in pain).  
The dr I see the most & knows me best suggested I see Dr. Rosner bc he thought I could have Chiari 1 based on so VERY many symptoms he helps me manage.  I have a pacemaker, and this has greatly hindered the ability to look at things more clearly.  Dr. Rosner ordered a CT Myelogram (along with other tests), and they all showed a very clear picture of what is wrong.  The ONLY thing is that I have a 1mm herniation, BUT my symptoms have diabilitated me in such a way that I am practically home bound bc it's so hard and hurts so much to leave.

MY QUESTION/NEED:  I've researched SO much about Dr. Rosner, as well as so many other chiari drs that have had medical board/license problems, but I would be MORE than grateful if anyone out there would be willing to share any experience they might have had or had direct contact with concerning Dr. Rosner.  I feel comfortable with him.  My "gut" feels comfortable with him, but there are still others that ask me if I know what he's done & why I feel comfortable with him.  

Any insight would be MORE than appreciated!  Thank you - Eyrin

[fibrotj]

Your most welcome Rebecca!  I hate seeing ANYONE going through this mess...but especially a precious CHILD!!  I certainly believe in prayer...& in the grace & blessings of our precious Lord, Jesus Christ!  Amen!  {{hugs}}   ;)
~tj

[youngwife]

Hey there!  I just wanted to thank you for praying for my daughter.  She has been through so much, and deals with so very, very much.  Your prayers are truly appreciated.

Blessings to you,

Rebecca

[youngwife]

Hey, Eyrin!

I am thankful that you now have a solidified surgery date, and can begin to see the end of this dark tunnel.  ((((HUGS))))

Rachael had a short cut, but we also knew of a patient that chose to keep her's long so she could cover it up.  I really think it will depend on your preference.  Dr. Rosner will make his necessary cuts, and leave you with a not-so-fashionable style back there.  But, hey, hair grows fast, usually. ;)

Oh, and did I mention that Rachael's birthday is on May 1st!?!?  How cool is that!?!

I will continue to be praying for you!

Rebecca

[10Ebtrfly]

To those who've written & helped care about me & get me through "this":
I am SO sorry about this!!! I'm just glad I figured this out sooner rather than later!
I had a problem with my page and name.  I ened up with 2 pages/names. 10Ebtrfly is my main one...the one I want to use & have always used. I was trying to do things on my phone, and it messed things up!!
Thank you - 10Ebtrfly (aka. eyrin)  :)

[Eyrin]

Hi there!  I hope you're doing well!  I have 2 questions for you if you don't mind...
1-Somehow I ended up having to redo my page, like they didn't recognize me, yet my posts are still there, but I had to redo my home page & it doesn't show I have the friends I have and that I had posted anything (yet the posts I had posted are still in the pages of posts).  Do  you know if there are any other things I need to make sure to do to make sure I'm still "in" the group?

2-The BIGGER question is...do you reccomend that I get a shorter hair cut before/for my surgery, or keep it longer?  In my mind I can see pros and cons for both, but I didn't know if keeping it longer would make the stitches and such more tender or be in the way, especially if I pull it into a ponytail?  Or it being short will it allow the stitches to be more open to the air (healing quicker), not have anything in the way, OR will it make it more tender to things touching it?  
I KNOW I'm being silly about this as I read it back!!!! I'm sorry!  I just want to make sure I go into this as comfortable as possible!  I've had a surgery before that landed me in and out of the hospital for 10 months & bed-bound w/ a home nurse 3 days a week. Had I known this wwas about to happen there would have been things I'd done that would've made things easier for me.  I guess this is me doing what I wish I'd been able to do before.
Thank you for being patient with me!  I'd really appreciate your help and advice as my date is coming soon, but still have some time to get this done.  THANK YOU!
:) Eyrin

[Eyrin]

Yep!...Dr. Rosner is doing my surgery! Yesterday I was told it'll be the week of the 18th most likely.  If not, then it'll be the week of the 25th.  As for the uncertainty...my hubby was talking with a father of one of his students. He's a surgeon that's worked with Dr. Rosner before & had wonderful things to say about him.  That was the last piece of the puzzle needed to solidify any uncertainty there might have been.  In my gut he was it.  Period.  For my parents, the second half of my caregivers, they needed that reassurance.  I'm just so blessed he was put in my path!  I'm waiting for this surgery...my symptoms have skyrocketed! I've got to be in one general space for the whole day until someone is home because of certain things that've happened wwhen I think "I can just do..."! :)
My birthday is May 1st, and this will be THE gift that'll just keep on giving!
As for your haircut...I think it's perfect!  I've been thinking about that fact and what to do about that.  I just ended up trimming my hair from that hair cut! So I won't be bothered if that's what is best.  
I'm glad, it makes me feel calmer in a sense that there's someone else going through this at the same time as me, and in the same place/by the same dr.  Please let me know how your plans progress, and your surgery gets a date. I was told they're waiting on his "tools" to arrive, places in the surgerical schedule/rotation to open up, and that he's going to a surgery conference before he starts working at Park Ridge.  If you'd like to get togeether for lunch or something before, I'd be more than willing! I can find a ride if given enough time, and I'm in south Asheville near Hendersonville.
Fibrotj - You've got to feel fullly comfortable w/ your dr/surgeon beyond a doubt!  Take your time to learn about chiari, the drs involved, and how it can be treated. There's alot out there for you to learn, and people that will be more than willing to talk with you!  It took me 6 years, to the month basically!, of dealing with this, seeing dr after dr, talking with people, researching, and reaching out to get my voice heard so my problems can be taken seriously!  So do NOT give up!!!
Thank you to EVERYONE here that is supportive and caring as I've gone through this process!  I KNOW I wouldn't be here and as strong going into surgery without the rupport I've found here.
I'll be in touch as my date nears, and I hope to hear as everyone else goes forward.
Love - eyrin