Has anyone else had trouble with getting into the neurosurgeons and neurologists, only to be told they don't treat chiari? Or how about doctors and staff that don't communicate to you and or just vague about scheduling your surgery? Well welcome to my world!The first neurosurgeon I went to had to look at my mris online and then I was told yes he wants to see you next week. I get in there and he said Oh I won't treat you until you get your tremors treated.
what a joke, Oh before this I waited 2 months to get into a ns up at the u of u, then when I got in there it wasn't the doctor that I was suppose to see, well this guy barely touched me He was in the room 5 minutes we had been waiting 1 1/2 hours, left the room and he didn't come back for another hour.When he came back in the room , he said basically I can't find anything to treat but not sayingtheir is nothing wrong, but I can send you to the pain clinic, by these comments both my mom and I were really upset, and I started crying, I had had it, we left right then.This neurosurgeon, now I waited 1 1/2 months to get into him, and then when I got in to see him he said well it looks like you've had all the tests and no all the information, lets get you into surgery, I'll have my girls get in touch with you. I said okay and that was that I thought. I never heard from "the girls" so I called them 2 1/2 weeks later. The office manager told me she was trying to get preauth for my surgery that was set tentatively for aug 27th.she would let me know. 2 weeks later still hadn't heard anything, so I called back, she said oh we don't need to worry about the preauth he wants you to see this other neurologist, no other explanation, I asked her why this doc hadn't said something when I saw him in the office? I don't know but he wants you to see him before he operates. I will spare you some of the drama,I did get an appt with him,a few days ago, he had no idea what he was seeing me for, nor did I. akward...
I went to the next desk and asked to speak with my ns. I left another message for him to call me.that never happened,I asked if they need any blood tests done before my surgery in a few days, she said oh we're not doing surgery on the 27th, I said when is he planning on doing this. She said he's not at this time, I flew off the handle and again the tears and my mouth began to flow again.Yesterday I called back saying he didn't call me, she said he will before the end of the day, he didn't. Again today I have left a message, I need some answers as to why she had told me all these things, and she told me he has you scheduled for sept 21, I was not happy, but what's to say she won't chaNGE that date again too. I am getting worse every day, I didn't think I could make it as long as I have. I am bedridden, I use a walker to get around, etc etc. The doctor never calls me, or communicates with me about anything. For me to go to another doc right now is going to add 2-3 months waiting period.They have over a barrel as my mom would say!What would you do? what can I do?sept 21 is 1 month away.My latest symptoms are apnea,facial and body numbness.gaggin, choking.etc, etc. I don't know where to turn or if their is anything, at all I can do to hurry this process up ? Should I start at the beginning again and get a new doc? I don't feel I have the time. anyone know I should do?
suzanne