pots

[irislita]

For those who have been diagnosed with pots what r ur symptoms. I notice getting to an upright position is exalerating my heart a lot...it feels like the double.i also use to get dizzy and seeing stars for a while then.i noticed queuing makes me so dizzy and lightheaded.when i am in crowds walking the exaleration does hurt in thr chest it feeld my heart is poundind out and i am going to pass out.if i am with friendd and i am talking loud it is the same

[irislita]

Hey thank you soo much.i ll talk about it with my doctor.i had surgery too and before it was even worse.i ll update you.

[zygy2]

:)  Hello, I have recently been diagnosed with POTS after having the tilt table test.  Although there can be many symptoms associated with it, the one that they look at is the increase in pulse when standing.  You can do a self test at home just by watching you pulse, I purchased a finger pulse meter at wal-mart when I thought my pulse might be the problem.  I could pretty easily see that my pulse was normal when laying down and had a large increase when standing which convinced me to follow up with my PCP.  She then sent me to the cardiologist for the tilt table test.  My major symptom was how tired i was all the time and the discomfort in my chest from the high heart rate.  The group that Selma suggested can have some great information but there is not a lot of activity in there so don't expect answers quickly.  There is some good reading though if you look through the posts!  As Selma also said, not so many with chiari so that also is different for us.  My NS believe that Chiari people can be prone to POTS and that it does not always increase with surgery, he feels if you have high pressure issues it is probably more of a problem.  I am going for a spinal tap today to see what my pressure is to see if a lumbar shunt might help since I have already had my decompression surgery!  Good luck figuring things out, it is all just a long frustrating process at times.  -zygy

[selmaS]

  There are a few here with POTS, but there are many more in that forum that can offer u much more info....and as I said keep in mind they may not have chiari along with it and that can change how u have to deal with it.

[irislita]

Thanks...didnt know where to addresse.lets see if they can answer.

[selmaS]

  Hi...I am not dx with POTS, but there is a forum here on MH that may be able to help with those issues...not all on that forum have Chiari so bear that in mind....but they can tell u more about POTS and related issues and symptoms.

http://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266?controller=forums&action=show&id=266&camp=msc