pseudomeningeocele

[rebadeba]

what are the symptoms associated with pseudomeningeocele

[selmaS]

   Hi and welcome to the Chiari forum.

  U got the best 2 from the forum to answer u as they both have had one and  know how they feel with them...were u dx'd with one or do u suspect u may have one?

[soccero]

im pretty sure this is a csf leak and if it is then ud have a horrible ha when u stand up but when u lay flat it would get significantly better!

[zygy2]

Hello!  I think like most things the pseudomeningocele can cause different issues for different people.  If it is letting out too much fluid, you can have low pressure headaches.  In my case I had a pressure issue so I did not get these low pressure headaches.  Where mine was located (at the decompression site) it was creating the Chiari issues again.  It was putting pressure back on everything and I knew something did not feel right.  It also did not allow my neck to heal well and I stayed very sore in my shoulders and neck.  I had a pseudo after my first surgery, I had a second to fix the leak and things went a bit crazy so I had a third surgery and I have yet another pseudo.  This is where he figured it was a pressure issue and I now have a shunt.  I don't know how to quite explain this but I can also tell where my pseudo is by tapping the back of my head/neck.  I can hear the change in sound when I tap.  The pseudo area sounds to me like my ears are under water.  I am not sure if this works for others but I got to see the MRI and it was right where I thought it was :)  -zygy