pulse heard in my head

[brokenbon]

I have a new diagnosis of CM, 6 mm. I was told "it's no big deal" by the neurolgist. I have since started having my pulse noticeable in my head 24/7. There are times when it makes me dizzy and unable to concentrate. Does anyone else have a 'pulsatile tinnitus'?  The neurologist really didn't have much for me. He thought maybe injects of marcaine in back of my head might help in a couple of weeks! MRI/A of brain are neg except for the CM.

[selmaS]

  Hi and welcome to the Chiari forum.'

I must agree with JC...we all need to vent and this is a safe place and it is a place where u know someone else understands how u feel...we have all BTDT with this condition...the list for the Dr is important to give it ALL to them regardless how long and let them decide as it may be something else along with ur Chiari causing it.

And that leads me into saying make sure u have ALL the testing for related conditions as they can affect how u feel and heal should u go forward with surgery.

We do have a list of Drs on here that a member has been to and liked use the list to research Drs....not all on the list may be true Chiari specialists, but it is a means to help u start ur research.

Know u r not alone : )

[JCappiello]

I have got that symptom as well along with a book full of other symptoms.. DO NOT FEEL LIKE A WHINER.... Dr's don't get how serious Chiari is... My neuro took me seriously.. I went to see a neurosurgeon where I live and he basically thought I was a quack... So my neuro told me to go to the Chiari Institute in Great Neck, NY - where I saw Dr. B.  He not only listened to all of my symptoms, but also told me they were real and I am NOT CRAZY and it is all part of the Chiari...  He also went above and beyond and diagnosed me with EDS..  If you can get to TCI.. I would go there.. They are great and specialize in Chiari dx

[brokenbon]

Thanks for the reply. I'm waiting to hear from a neuro surgeon office...if they feel it's necessary for them to see me. What can I tell them to convince them to see me? Listing all the symptoms just makes me feel like a whiner!

[GinaMV]

I too had this pulse feeling in my head and also a sensation I referred to as "sizzling bacon" in my head.  I, too, was told by my first neurologist that it wasn't that big of a deal and surgery wouldn't really change my life.

I did a lot of research and found a specialist in Chiari and made an appointment with him.  I went on to have the surgery and let me tell you...it was absolutely life changing!  I could not have ever imagined how much better I would feel.  If you don't feel confident in the first doctor, find another.  Unless they really know a lot about chiari I don't feel like they fully understand it.

good luck!